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  1. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He is deeply confused, and his arguments can be refuted in seconds, as they have been here and on Twitter. Amazing this man was a professor of evidence-based medicine. He is obsessed with speculation and hypothesis.
  2. InitialConditions

    Long Covid in the media and social media 2023

    It was a case in a young boy—headaches and tiredness since third(!) covid infection. A link with exertion was made, as his Mum said his headaches were worse after he's been to football. Doctor said this fits with long covid, and very briefly brought up the concept of pacing.
  3. InitialConditions

    Long Covid in the media and social media 2023

    According to the Freeview online TV guide, there is case of long covid on tonight's episode of GPs: Behind Closed Doors at 7pm on Channel 5 (UK)
  4. InitialConditions

    Closure of reMEmber (the Chronic Fatigue Syndrome Society) effective from 31st March 2023.

    Yes, they were active in Forward ME. There are a few smaller charities for which it is not exactly clear how active they are, if at all. I'm glad Remember have made their closure known.
  5. InitialConditions

    Endothelial dysfunction in ME/CFS patients, 2023, Sandvik, Mella, Fluge et al

    Also suprised to see this paper only had one reviewer. I don't think one reviewer is ever sufficient.
  6. InitialConditions

    Endothelial dysfunction in ME/CFS patients, 2023, Sandvik, Mella, Fluge et al

    o_O [A little in-joke I have with myself...] Madness that no co-author, reviewer, editor, or typesetter caught this, especially as it's in the abstract.
  7. InitialConditions

    UK: Dr Sarah Myhill

    I think Dr Myhill revels in it. I think she fancies herself as a sort of renegade, and she knows she has enough patients and other business interests to continue having a good income, even if she can't practise for a while.
  8. InitialConditions

    New Video: Chronic Fatigue Syndrome is a terrible name

    Another good video, Adam. Do you get someone in to do the narration?
  9. InitialConditions

    Experience with LDN? low dose naltrexone

    Yep. I've found the majority of patients underestimate the effect that natural fluctuations have, and sometimes they don't consider it at all. I think a patient is more likely to want to try a new intervention when they are in a crash — feeling desperate etc. Coming out of a crash would likely...
  10. InitialConditions

    Experience with LDN? low dose naltrexone

    Also, what's the latest with Jared Younger's LDN for ME trial?
  11. InitialConditions

    Experience with LDN? low dose naltrexone

    I took it briefly but had no real change (except vivid dreams). It may not have been long enough. I can't remember now why I chose to stop. I tweeted recently about what I consider undue hype around LDN. While it may seem harsh — and there are people in the Facebook group I mention who have...
  12. InitialConditions

    Butterfly symbol for ME/CFS

    I'm not a fan of the butterfly logo. It seems a little old-fashioned and a bit too 'cutesy' if that's the right word.
  13. InitialConditions

    Fold-up chair for kitchen

    That's pretty much what I had seen. Thanks!
  14. InitialConditions

    Article on people claiming PIP, figures, top 50 conditions

    I think it might come under muskeloskeletal, but not certain.
  15. InitialConditions

    What can PwME hope for in 2023?

    I don't think we're gonna get results from DecodeME this year — not after recent delays. Paper writing usually takes at least 6 months. Probably spring 2024 IMO.
  16. InitialConditions

    Fold-up chair for kitchen

    Thanks. Yes, I've seen something like this before. Could be an option, but seems maybe overkill (and a little pricey).
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