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  1. Sean

    Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept, 2025, Hale

    Yep. The whole lack of energy concept, while superficially appealing, is seriously misleading. I really wish we could ditch it completely. It is not a lack of energy (certainly in the technical sense), it is the inability to put it into effect without a very high cost, both at the time of...
  2. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    Yep, that is basically what is happening. All superficial short-term feel-good and serious pressure to not report any bad stuff. Then the pros walk away before the reality hits and they have to confront it.
  3. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    You would think so, in theory. But apparently not in practice.
  4. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    Does supported self-management seem the best way forward at this time? For example, if there are other treatments being explored, we may need to consider if they are complimentary and can run in parallel, or perhaps one approach may need to be delayed to a different time so that they run in...
  5. Sean

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    If possible and safe for you to do so, then I think it is quite important to get this kind of stuff on the public record, partly to be able to confront those who wrote and signed it and demand an explanation, and partly to expose them to the rest of the world. It might help enlighten and...
  6. Sean

    News from Scandinavia

    The behavioral medicine approach is presented as harmless, There is no such thing as a therapy without risk of harm, one that can only deliver benefit. If a treatment has the power to do good then it also has the power to do harm. Anybody who claims there is should be immediately struck of the...
  7. Sean

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    We can counter with the much more fundamental human right for patients to have any therapy, rehabilitative or otherwise, to be firmly based in robust evidence of both efficacy and safety. Besides, all non-palliative therapies are in some sense rehabilitative, in that they aim to improve...
  8. Sean

    Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved (The Sick Times)

    There are still zero approved cures for it Or treatments. Saying 'cures' is giving the BPS club the chance to say they are only offering treatments, to help manage it.
  9. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    At what point does this become straight fraud? Not to mention cruelty. Exactly. It simply does not work without invoking some version of deconditioning, physical or psychological.
  10. Sean

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    Massive own goal, and so avoidable. Sometimes we are our own worst enemy. Patients have to accept that at this point there just isn't any robust explanatory or treatment model, and barely anything useful for the most basic management, and no quick or easy way to get to them. That is not...
  11. Sean

    Evaluation of Interventions for Cognitive Symptoms in Long COVID, 2025, Knopman et al

    Why is there so little basic honesty in the first place? The whole quality control process is failing at every level in psychosomatics, from initial writing, through reviewers, to the final approval by the editors.
  12. Sean

    Abnormal breathing patterns and hyperventilation are common in patients with chronic fatigue syndrome during exercise, 2025, Mancini, Natelson et al

    I thought a shallow breathing pattern was part of hyperventilation, and that the opposite was found in ME/CFS patients (oxygen hunger deep breathing)?
  13. Sean

    Digital cognitive behavioural self-management programme for fatigue, pain, and faecal incontinence in [IBD]... 2025 Moss-Morris, Norton et al

    People who complied with the intervention appeared to derive benefit. 'complied' Bastards don't want to get better.
  14. Sean

    Crowdfunding for David Tuller during October 2025

    Third of three done. :thumbup:
  15. Sean

    Medscape article: No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    Nonetheless it is important to get this stuff on the formal record. Every little bit acts as another click of the ratchet to further constrain the excuse that nobody tried to point it out. Yep. The rot is very deep and wide.
  16. Sean

    [Project description][MAP-FAT] Mechanisms of Persistent Fatigue - Wyller

    Persistent fatigue (PF) is a highly prevalent transdiagnostic symptom. Which does not mean it has the same causal processes nor management/treatment, if any. PF is an under-researched field, with scarce knowledge of disease mechanisms as well as treatment and preventive measures. So WTF have...
  17. Sean

    Petition: A Call for the Universal Use of Respirators in Healthcare (deadline October 31st)

    You make some fair points in your comment, but this one is not a big issue anymore as evolving mask design has largely got around that, for general purpose N95/P2 standard at least. I use a brand of N95/P2 standard called Halyard Fluidshield 3 that are very comfortable and can be worn all day...
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