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The next cohort is long Covid.

Definitely. I predict we'll discover their pathology is very similar, if we can unravel GWI before most of their cohort passes away and can't be studied anymore.

It's great that post-infectious illness is going mainstream to the extent a more general scientific body appointed a specialist in them as president, and published a call for more research into them.

I can't believe people with GWI have suffered for so long (30+years) with so little research. I know pwME have done the same, but I've only been ill 5 years and entered the ME world in 2021, when LC was well-known and the new NICE guidelines came out.

Might be a combination of media tending to cover the same stories in unison, research on the financial cost (nothing worries the rich/politicians like the economy), and finding a gene (which makes it more "real").

Agreed. If anything, very poorly understood diseases might be the best candidates for a GWAS, because when studying the whole genome, we don't need to know where to look.

Their use of terminology is odd here. Presumably, all psychosis has biological origins, some understood, others not. But it's strange that only understood causes are called "organic." A better term would be identifiable cause?

AIM ImmunoTech Enrolls and Doses First Subject in Phase 2 Study Evaluating Ampligen® for the Treatment of Post-COVID Conditions https://aimimmuno.com/aim-immunotech-enrolls-and-doses-first-subject-in-phase-2-study-evaluating-ampligen-for-the-treatment-of-post-covid-conditions/ They're off and...

You might be biased but it's a good bias :-). DecodeME needs every mention it can get.

That's as evil as the devil. Potentially costing employees huge amounts of disability insurance benefits when they're too ill to work.

If this is something you eat, it will do nothing. Collagen is a protein, meaning your digestive system will break it down into its component amino acids before it's absorbed.

I'm surprised they didn't mention the metformin study.

I guess the myalgia got better.

The first patients have been given the drug: Translated:

I'm a strong advocate for the nanoneedle. The results are so dramatic we need to keep developing it until it's either a validated test for ME or until we understand what failed. I would say: Develop a more efficient nanoneedle machine that can test many samples at once Validate it by doing...

Let me make a prediction. Recently, a GWAS of long Covid found an association with FOXP4. I bet that DecodeME will find an association between FOXP4 variants and ME, at the genome-wide significance level. Also, I think most of the genes Decode finds will be for the immune and nervous systems.

Better late than never. Now's a better time than any, because post-viral illness has come for their own house so to speak.

Recently the BRAIN Foundation interviewed PaxMedica's CEO on Suramin's potential for autism. Suramin for Autism: An Update for 2023 and Beyond https://www.paxmedica.com/update/20230619

There's probably one in America too. I bet awareness is a big problem. I'm sure interest in participating in studies is low among the general public.

That's really good. I'm very surprised that there's currently no system that lets you register as interested in doing research, and sends you an e-mail when a study that might interest you is recruiting.