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Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO, 2021, Hakim et al.

Discussion in ''Conditions related to ME/CFS' news and research' started by SNT Gatchaman, Apr 1, 2023.

  1. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO
    Alan J. Hakim; Brad T. Tinkle; Clair A. Francomano

    Volume 187, Issue 4 Special Issue: Ehlers‐Danlos syndromes, Hypermobility Spectrum Disorders, and Associated Co‐Morbidities: Reports from EDS ECHO

    Paywall

    Link (American Journal of Medical Genetics Part C: Seminars in Medical Genetics)
     
    DokaGirl and Peter Trewhitt like this.
  2. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Alan Hakim was one of our trainees and took over the hypermobility story from Rodney Graham. He is probably now the main person in the UK pushing the make-believe about 'hEDS' or 'HSD'. The excerpts are typical. I think this is doing a huge amount of harm, particularly for children and adolescents, but the British Society for Rheumatology does not appear to want to take a stand.
     
    SNT Gatchaman, shak8, FMMM1 and 3 others like this.

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