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Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop, 2022

Discussion in 'Long Covid research' started by Wyva, Jul 18, 2022.

  1. Wyva

    Wyva Senior Member (Voting Rights)

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    Contributor(s): National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Laura Aiuppa Denning and Erin Hammers Forstag, Rapporteurs

    --

    'Long COVID' refers to the wide range of long-lasting symptoms experienced by some patients after a SARS-CoV-2 infection. The most common symptoms include fatigue, headache, brain fog, shortness of breath, hair loss, and pain. At this time, there are many knowledge gaps related to Long COVID, including the prevalence of the condition, the impact of the symptoms on survivors' ability to function, and the long-term course of the condition. While many individuals with Long COVID recover within one year, others experience little or no decrease in symptom severity over time.

    Long COVID symptoms can affect a person's ability to work and otherwise function in daily life, so people with the condition may need to utilize programs such as Social Security Disability Insurance (SSDI) and the Supplemental Security Income Program (SSI). The Social Security Administration (SSA), which administers both of these programs, requested that the National Academies of Sciences, Engineering, and Medicine host a public workshop to discuss research into the long-term health effects of COVID-19, their impacts on individuals and populations, and how the SSDI and SSI programs can support individuals who suffer disability as a result of Long COVID. This publication summarizes the presentation and discussion of the workshop.

    Open access: https://nap.nationalacademies.org/c...xamining-long-term-health-effects-of-covid-19
     
    Kalliope, ahimsa, Sean and 6 others like this.
  2. Wyva

    Wyva Senior Member (Voting Rights)

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    Last edited: Jul 18, 2022
    ahimsa, Sean, alktipping and 4 others like this.
  3. Hutan

    Hutan Moderator Staff Member

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    Location:
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    There's good stuff:
    Recognition of similarity to ME/CFS, even if it's not made explicit, and mention of PEM:
    Recognition of the need for training - although there's inconsistent talk of Long Covid as a diagnosable entity while at the same time using it to mean anything from post-ICU issues, mental health issues arising from Covid-19 experiences, lung damage, and ME/CFS:
    Recognition of the need to take post-covid conditions seriously, and pointing to biological causes e.g.

    And there's quite a lot of problems, partly the result of "Long Covid" covering all sorts of post-covid issues:

    Of course if you are talking about all manner of problems, then all manner of solutions seem reasonable e.g. exercise. There is no warning against exercise in the summary:
    And there's the potential mixing up of people's frustration and anger at the situation they find themselves in as mood-disorders, and the writing off of symptoms as 'trauma-related' that paradoxically contributes to the trauma
    "Deeks" looks to be a major problem, whoever they are. They got a lot of air-time in the summary, saying a lot of things that are tremendously harmful and misleading
    Looks like a lot of work yet to do by patient advocates.
     
    Last edited: Jul 18, 2022
    Missense, Sean, alktipping and 6 others like this.
  4. Andy

    Andy Committee Member

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    Possibly Steven Deeks, MD, University of California, San Francisco & Zuckerberg San Francisco General Hospital as he was part of the committee for this.
    Long-Term Health Effects Stemming from COVID-19 and Implications for the Social Security Administration: A Workshop, https://www.nationalacademies.org/e...the-social-security-administration-a-workshop
     
    Sean, alktipping, Trish and 4 others like this.
  5. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Thank you for this @Hutan.

    Re the "holistic approach" noted in the article, it seems like just a lot of words to bulk up the impression of effective treatment.

    A very familiar tune.
     
    Missense, Milo, bobbler and 3 others like this.
  6. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Interesting re "hair loss" as a symptom with LC. I believe hair loss has been noted as a ME symptom. Early on with ME I experienced this.

    Untreated anemia, and untreated hypothyroidism can also cause hair loss.
     
    ahimsa, Missense, alktipping and 2 others like this.
  7. Andy

    Andy Committee Member

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    Perhaps he could be asked about his remarks at this event?
     
    DokaGirl, NelliePledge, Wyva and 2 others like this.
  8. Sean

    Sean Moderator Staff Member

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    They do indeed appear blind to the very real secondary psychosocial trauma their unproven speculation about primary psychosocial trauma may be creating and/or perpetuating.
     

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