IIMEC18: Invest in ME Conference 2026

Videos:

Simon Carding
Professor Simon Carding
Quadram Institute, UK

Opening and #BRMEC15 Days 1-2 Summary
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Andrew Wilson
Professor Andrew Wilson from Universiry of East Anglia

A platform for Clinical Trials in ME
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Gitendra Uswatte
Professor Gitendra Uswatte - University of Alabama at Birmingham, USA

Brain fog treatment: Preliminary findings from cognitive rehabilitation trials in adults with post-viral syndromes
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Rikke Olsen
Professor Rikke Olsen
Aarhus University, Denmark/EMERG

Hypoxia-Induced Mitochondrial Stress-Signaling: A Randomised Controlled Trial for ME
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Caroline Dalton
Dr Caroline Dalton
Sheffield Hallam University, UK
Digital Tools for a Complex Disease: Harnessing Wearable Data in ME Research and Trials
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forestglip said:
Gitendra Uswatte
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We were not very impressed by that trial..
John Mac

Trial Report Thread 'Long COVID Brain Fog Treatment: Findings from a Pilot Randomized Controlled Trial of Constraint-Induced Cognitive Therapy, 2024, Uswatte et al'

Now published - post with link here


Preprint
Abstract

Purpose: Long COVID brain fog is often disabling. Yet, no empirically-supported treatments exist. This study′s objectives were to evaluate feasibility and efficacy, provisionally, of a new rehabilitation approach, Constraint-Induced Cognitive Therapy (CICT), for post-COVID-19 cognitive sequelae.

Design: Sixteen community-residents ≥ 3-months post-COVID-19 infection with mild cognitive impairment and dysfunction in instrumental activities of daily living (IADL) were enrolled. Participants were...
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IIMEC18 Mari Gamme Sollie / Trine Alm
Specialised care for seriously and very seriously ill People with ME

Mari Gamme Sollie / Trine Alm Holterbakken, Røysumtunet, Norway

Thread for paper.
 
Chandelier said:


IIMEC18 Mari Gamme Sollie / Trine Alm
Specialised care for seriously and very seriously ill People with ME

Mari Gamme Sollie / Trine Alm Holterbakken, Røysumtunet, Norway

Thread for paper.
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Sarah Boothby on Bluesky:
This is what care for severe #ME looks like. @janetdafoe.bsky.social and I wept at the sight.​
Norwegian with English subtitles.​

SNT Gatchaman said:
The first five lectures have been uploaded to YouTube. See channel videos at https://www.youtube.com/@iimeinfo/videos
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I think all videos have been uploaded now:




https://youtu.be/2Esm7DOm_XA
https://youtu.be/_Qcu40jtE7k
 
NelliePledge said:
Is that Professor Ana Palacio the same one who is speaking about Amagdla retraining at the NL conference?
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Good catch, for context:
Grigor

Post in thread 'Study registration: Amygdala Insula Retraining in the Management of Long COVID Symptoms'

There's a poster presentation of this study during the ISLC conference in Amsterdam. The author Ana Palacio claims that Amygdala and Insula Retraining (AIR) Improves Fatigue, Dysautonomia, and Inflammatory Markers in Long COVID.

Unfortunately we're not able to follow the conference itself.

I'm really not sure why it has been approved for ISLC...

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