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Improving Wikipedia's references to ME/CFS

Discussion in 'Advocacy Projects and Campaigns' started by Dr Carrot, Jan 30, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    entry on CBT includes this
    surprisingly the referenced paper is one from 2006
     
    Snow Leopard and alktipping like this.
  3. rvallee

    rvallee Senior Member (Voting Rights)

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    That link should go to the cherry-picking entry instead. By way of a GIGO redirect.

    Although, to be fair, literally nothing has actually changed since then, this 20 year-old body of evidence is the exact same that exists today because the experiments since then are all identical and nothing else has been seriously tried. Even the later Cochrane review are the exact same, the experiments and papers are different but their content is identical.

    The same could be said 50 years in the past, or 100, and if nothing changed the same would hold true for the next 50 years. Science whose substance does not change over the course of a century is not actual science, it's a belief system.
     
    Medfeb, alktipping, Arnie Pye and 2 others like this.
  4. pteropus

    pteropus Senior Member (Voting Rights)

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    hello. just want to say thank you to everyone who has been improving the Wikipedia entry for ME/CFS.
    i hadn't checked for a while (because emotionally distressing), but some of the horrific rubbish has gone.

    THANK YOU !!!
     
    inox, Frankie, alktipping and 16 others like this.
  5. Sean

    Sean Moderator Staff Member

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    I do like Wikipedia as a concept, and mostly in practice. But they have not made it easy with their historical failure on ME and related stuff.
     
    Sisyphus, alktipping, Yessica and 6 others like this.
  6. Forbin

    Forbin Senior Member (Voting Rights)

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    I wonder if there's a place in the Wikipedia article for Dr. Anthony Fauci's opinion that long-Covid symptoms are "highly suggestive of myalgic encephalomyelitis and chronic fatigue syndrome."

    Or would they say that Dr. Fauci isn't a good enough source?

    https://www.youtube.com/watch?v=UMmT48IC0us





     
    Last edited: Dec 14, 2020
    Ariel, alktipping, Yessica and 6 others like this.
  7. InfiniteRubix

    InfiniteRubix Senior Member (Voting Rights)

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    Flagging the wiki active members that the draft NICE conclusions (esp re low and very low qual) should be added both to the ME page and the Lancet page

    I am otherwise over-consumed to address myself, but wanted to flag to make sure it's on the radar
     
    Lidia, alktipping, cfsandmore and 3 others like this.
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    not wikipedia but merriam-webster dictionary
    you can comment
    https://www.merriam-webster.com/dictionary/myalgic encephalomyelitis
     
  9. Ravn

    Ravn Senior Member (Voting Rights)

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    If anyone wants to suggest an alternative definition keep in mind some key dictionary "rules":

    1) The definition must be brief. Which is a bit of a challenge when trying to explain ME.

    2) The definition shouldn't include "difficult" words. The threshold for what counts as difficult is pretty low. I wouldn't be surprised if the choice of the word tiredness was made to avoid the more difficult word fatigue.
     
    rainy, alktipping, mango and 4 others like this.
  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Michael Sharpe entry on wikipedia (posting just incase it gets changed)
    https://en.wikipedia.org/wiki/Michael_Sharpe_(psychiatrist)
     
    rainy, Frankie, Lidia and 12 others like this.
  11. rvallee

    rvallee Senior Member (Voting Rights)

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    inox, rainy, EzzieD and 10 others like this.
  12. Sisyphus

    Sisyphus Senior Member (Voting Rights)

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    When did MW abjure the use of ‘difficult’ words from the dictionary? Read an old one, there was no such rule.
    Formerly trusted institutions are corrupting and de-contenting themselves, aiming to dumb down public discourse. From The Lancet to a dictionary, it seems a common phenomenon.
     
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  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Hutan, inox, Chezboo and 2 others like this.
  14. Trish

    Trish Moderator Staff Member

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    I don't know what the old version said. There seems to be no mention of PACE on that page.

    The page for CFS at a quick glance seems to be OK on energy management/GET/CBT. Again, I don't know what it said before.
    https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome#Graded_exercise_therapy

    The section on PACE on this page looks up to data and OK at a glance.
    https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome
     
  15. Wyva

    Wyva Senior Member (Voting Rights)

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    This is not in connection with the ME/CFS Wikipedia entry but with how it is mentioned on the fibromyalgia page (https://en.wikipedia.org/wiki/Fibromyalgia):

     
  16. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Previous version:

    https://en.wikipedia.org/w/index.ph...psychiatrist)&direction=prev&oldid=1020875600

    Removed material:

    The inclusion of the PACE trial information in the previous version was removed on the grounds cited on this page:

    https://en.wikipedia.org/wiki/Wikipedia:No_original_research
     
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  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Trish likes this.
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Last edited: Dec 31, 2021
  19. CRG

    CRG Senior Member (Voting Rights)

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    I can't see it ???
     
  20. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    It's under the heading:
    Individuals with medical conditions

    CBT has been shown to be moderately effective for treating chronic fatigue syndrome.[165]
     
    Sly Saint likes this.

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