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#MEAction podcasts - Chronically complex

Discussion in 'Resources' started by Sly Saint, Nov 15, 2022.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Location:
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    Steven Molony is an actor, writer, and filmmaker who makes all of #MEAction’s videos in addition to supplying voiceover. He is an ally to people with myalgic encephalomyelitis, Long COVID, and other chronic illnesses.

    Jaime Seltzer is #MEAction’s director of scientific and medical outreach and she does research for Stanford University on ME and other complex chronic diseases. She is a person living with ME, and ME runs in her family with both her mother and sister affected.

    EPISODE 1: MEGHAN O’ROURKE AND THE INVISIBLE KINGDOM
    EPISODE 2: FIONA LOWENSTEIN
    EPISODE 3: #MILLIONSMISSING 2022
    EPISODE 4: MAYO CLINIC
    EPISODE 5: RYAN PRIOR AND THE LONG HAUL

    Chronically Complex: The #MEAction Podcast - #MEAction Network




     
    Hutan, Kalliope, DokaGirl and 7 others like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Introducing Our Next Guest:
    David Tuller



     
    alktipping, Hutan, Kalliope and 2 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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  4. Hutan

    Hutan Moderator Staff Member

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    Location:
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    'complex chronic disease'
    'chronically complex'

    I may be signed on to a losing battle in trying to keep the word 'complex' away from ME/CFS. I don't think a label of 'complex' is at all helpful. It can be easily taken to mean that there are both biological and behavioural/psychological issues causing the condition. Not knowing the etiology of a disease is not the same as the disease being complex.

    Great interview @dave30th and Jaime.
     
    Last edited: Jan 14, 2023
    Ash, alktipping, Andy and 6 others like this.
  5. bobbler

    bobbler Senior Member (Voting Rights)

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    agree strongly
     
    Ash, alktipping, Hutan and 1 other person like this.
  6. hibiscuswahine

    hibiscuswahine Senior Member (Voting Rights)

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    It was a good interview, very interesting to hear David’s journey from journalism to public health and his reactions when tried to get responses from BPS brigade.

    I actually don’t mind the word complex, speaking for myself, it is a complex presentation of symptoms and can take doctors time to tease them out especially when trying to consider the best symptomatic relief medication due to often high side effects to meds available. Many patients have complex presentations due to comorbidities and aging. Complexity is often because of the effect of one medicine for one physical system on another system. In psychiatry, often complexity was having multiple medical disorders outside the primary psychiatric diagnosis, or having several psychiatric diagnoses. In medicine, it is the same and all diagnoses need to be treated with care and diligence.
     
    Ash, RedFox, alktipping and 2 others like this.
  7. ahimsa

    ahimsa Senior Member (Voting Rights)

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    S4ME News likes this.

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