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POTS/Exercise intolerance treated with Humira

Discussion in ''Conditions related to ME/CFS' news and research' started by belbyr, Mar 31, 2023.

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  1. belbyr

    belbyr Established Member (Voting Rights)

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    Hutan, DokaGirl and Peter Trewhitt like this.
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    This should never have been let through peer review like this.
    All it shows is that if you have bad enough ankylosing spondylitis to justify Humira - i.e. you have constant pain, fatigue and inability to sleep comfortably - then if you also have postural tachycardia it may be improved if you get a dramatic improvement in all the Ank spond symptoms. Which would hardly be surprising.

    Ank spond isn't autoimmune so I don't see any reason why improvement in POTS makes it likely to be autoimmune either.

    And I have no idea how they decided which symptoms were part of 'POTS' when most of them would be explained by the AS.
     
    Lisa108, FMMM1, Hutan and 8 others like this.
  3. Mister Person

    Mister Person Established Member (Voting Rights)

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    Did pots end up with CFS with that FAABs test showing it was absoluteluseless?
    Yes I found the thread about it, hard to find gee. That halcyon guy somehow predicted this. Hwo cool
    https://forums.phoenixrising.me/thr...iable-as-an-indication-of-autoimmunity.88076/
     
    Last edited: Jul 15, 2023
    Peter Trewhitt likes this.

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