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Review: Chronic Fatigue Syndrome, 2020, Sapra

Discussion in 'General ME/CFS news' started by Andy, Jun 6, 2020.

  1. Andy

    Andy Committee Member

    Messages:
    21,814
    Location:
    Hampshire, UK
    https://www.statpearls.com/kb/viewarticle/21640
     
  2. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    6,674
    Location:
    UK
    Wow.

    How can they start listing so many 'things' that have been found 'different', and then not wonder how on earth CBT and GET could possibly positively affect them. What thought processes lead to the conclusion that CBT and GET could possibly do anything useful, and why.

    It's got to be the fluffy dice theory.

    People with fluffy dice in their cars may tend to have more accidents therefore making fluffy dice illegal must logically make peoples driving better.
     
    Michelle, Simbindi, obeat and 7 others like this.
  3. Sean

    Sean Moderator Staff Member

    Messages:
    7,046
    Location:
    Australia
    :thumbsdown:

     
    Simbindi, MEMarge, sebaaa and 4 others like this.
  4. Forbin

    Forbin Senior Member (Voting Rights)

    Messages:
    1,581
    Location:
    USA
    Well, it goes without saying that CBT & GET would be useful in addressing the fatigue induced deconditioning that's at the root of your brain inflammation (!). :rolleyes:

    [This is actually a pretty thorough article though, if somewhat incurious about its internal contradictions.]
     
    MEMarge, Andy and Wonko like this.
  5. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,534
    Location:
    Aotearoa New Zealand
    The authors are based at the Southern Illinois University School of Medicine.

    The publisher is StatPearls.
    Screen Shot 2020-06-06 at 10.30.08 PM.png

    So I think it looks like random people can write an article by googling a bit with limited understanding, publish it through StatPearls and then add a review article to their CV. And then StatPearls provides the collection of review articles and related questions to 'over 2,000 professional schools, training programs and hospitals world-wide'.

    While I shake my head at all the stuff that is wrong in the article, I'm not sure how many people will ever actually read it. It's hard to know if this is something to spend time on or not.
     
    Michelle, Simon M, Simbindi and 9 others like this.
  6. Trish

    Trish Moderator Staff Member

    Messages:
    51,890
    Location:
    UK
    Maybe one for @dave30th to tackle. It would be good to get this junk removed, even if only a few people read it.
     
    Simon M, Simbindi, Willow and 7 others like this.
  7. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,637
    Though this is likely to be the case for some people with ME, it does sound like an enormous vague generalisation that lacks a clear evidence base. What are the ‘things’ assumed to worsen, and surely it depends on what treatment they get. Most people with ME would argue that GET would make them worse, so we we might expect on the basis of this that some at least get worse following diagnosis and referral to the harmful GET, that for some they might have done better therefore being undiagnosed.

    There is some evidence/suggestion that people who attend up attending specialist ME/CFS services in the UK, which are primarily based on GET/CBT, experience objective deterioration as measured by subsequent regular hours in employment or levels of benefit state claimed. They might arguably have been better off literally and metaphorically without this service.

    Further a number of people with ME seek to conceal their diagnosis in medical settings. Presumably they believe that this diagnosis is actually harmful to them achieving access to good medical care for other biomedical symptoms.
     
  8. Snowdrop

    Snowdrop Senior Member (Voting Rights)

    Messages:
    2,134
    Location:
    Canada
    It does look thorough. And all of it is backed up with legitimate pubmed references.

    It could be that this person is unaware of the problems with some of the studies particularly for GET CBT.

    This would be an excellent example then of why reputable journals need to be more vigilant and careful in reviewing and parsing all the details and data of a study before publishing.
     
    Michelle, alktipping, Hutan and 3 others like this.
  9. Hoopoe

    Hoopoe Senior Member (Voting Rights)

    Messages:
    5,234
    This and the Edzard Ernst blog shows why The Lancet needs to acknowledge the problems with PACE. People continue to be misled.
     
    Michelle, alktipping, Sean and 5 others like this.
  10. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,300
    Location:
    Canada
    Sadly the lesson appears to be that as long as the PACE authors refuse to retract, nothing will happen. 3/4 of the authors of the retracted HCQ agreed to the retraction and it seems the other simply ghosted them. I don't know what Lancet would have done otherwise but requiring fraudulent authors to agree they presented fraudulent findings is a lot like only convicting people who agree they committed a crime while treating them with unearned respect to avoid offending them. That's a ridiculous process, self regulation never works when it conflicts with personal interest.

    Though this is definitely a great opportunity to highlight PACE and how utterly morally bankrupt everyone involved in this is. If only things like fabricating evidence and outright lying about it meant anything in medical research. Oh well, it's just a matter of time. Justice grinds slowly but it only leaves dust in its wake.
     

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