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Open UK: Pacing with a Heart Rate Monitor pilot study, Physios for ME

Discussion in 'Recruitment into current ME/CFS research studies' started by Andy, Aug 30, 2022.

  1. Andy

    Andy Committee Member

    Messages:
    21,814
    Location:
    Hampshire, UK
    "We’re thrilled to announce that a new pilot study is now recruiting: "A pilot study to identify the feasibility for a definitive study that will investigate the effectiveness of pacing with a heart rate monitor for people with Myalgic Encephalomyelitis and long COVID."

    There is growing anecdotal evidence that pacing with a heart rate monitor is being utilised as a management strategy for people with ME and Long COVID. However, there is a lack of formal studies in this area.

    This pilot will determine the feasibility of conducting a definitive study to investigate the effectiveness of pacing with a heart rate monitor for people with ME and Long COVID.

    To be eligible for this pilot you will need to:
    - live in Manchester, Liverpool or Cheshire areas (United Kingdom)
    - fit the ICC criteria for ME or have Long COVID with Post Exertional Malaise
    - never have tried heart rate monitoring for pacing"

    Further detail, including Participant Information Sheet, at https://www.physiosforme.com/post/pacing-with-a-heart-rate-monitor-pilot-study-recruiting-now
     
    Wits_End, Lilas, Lisa108 and 16 others like this.
  2. RedFox

    RedFox Senior Member (Voting Rights)

    Messages:
    1,244
    Location:
    Pennsylvania
    Finally, a study on pacing. And it'll be totally free of BPS logic because it's by @PhysiosforME . They're recording lots of objective data--I hope the primary outcome measures will be objective.
     
    Lilas, Joan Crawford, bobbler and 8 others like this.
  3. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,637
    Great news @PhysiosforME

    If you end up needing to extend your research area to Derbyshire let me know, but I do hope you are able to recruit sufficient numbers in your current area.
     
  4. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
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    Location:
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    From Physios for ME's website:

    "The pilot is being run by Physios for ME, The University of Liverpool, the Facebook group “ME/CFS – Pacing with a Heart rate monitor #2”, Professor Todd Davenport, the Stockport ME support group and Harry Leeming, the CEO of Visible, who are aiming to build the first activity tracking platform designed specifically for people with chronic illness."

    Forum thread on 'Visible' :

    https://www.s4me.info/threads/visib...and-pacing-including-me-cfs-long-covid.23542/

    On Twitter:

     
  5. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
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    Location:
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    I think we also have a discussion on the study protocol somewhere on the forum, including thoughts on which objective data to chose and whether cognitive testing could be included.

    Not able to continue searching now, but hope it's OK to copy and paste from the Participant Information Sheet:
    Edit -- apologies for any confusion.

    Not sure now, but I think I was remembering the feasibility study for the pilot study.

    Threads on the feasibility study:

    https://www.s4me.info/threads/uk-pl...ly-activity-2020-21-clague-baker-et-al.15110/

    https://www.s4me.info/threads/recru...of-pwme-during-normal-daily-activities.20406/
     
    Last edited: Aug 31, 2022

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