USA: RTHM Health

RedFox

RedFox

Senior Member (Voting Rights)
There's a new ME/CFS telehealth service out there called RTHM Health.
  • They started as a specialist service for long Covid but have expanded to ME/CFS, POTS, and some other disorders
  • Their sign-up form implies they're currently accepting patients from Arizona, California, Florida, New York, Oregon, Tennessee, Washington, and Maryland.
  • They don't take insurance at all. They claim they're working on it.
Does anyone have experiences from RTHM?
 
I would sign up immediately if they took Medicare and it was available here. I'm very uncomfortable with doctors who don't understand ME because suspect I have medical PTSD. Pennsylvania might come soon--I imagine they're prioritizing the biggest states--but I'm not holding my breath for Medicare coverage, because they pay less than private insurance.
 
RedFox said:
I don't see the commonality.
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Sorry, had linked to wrong post in thread.

In first post: Since the development and findings of this paper, Snyder has spun his research out into two new companies: Rhythm, a chronic condition company that is trying to find markers for better diagnosis and treatment of COVID-19 and chronic fatigue syndromes, and Iollo, which will provide wellness profiles for patients from 650 molecules in one’s blood.
 
I just stumbled upon the RTHM website. The web design is so annoyingly modern and flashy that I want to be sick. If this was my last available option for healthcare in order to stay alive my cause of death could be given as "poor web design" because I wouldn't want have anything to do with them.

(I have no idea about the quality of the healthcare itself.)
 
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ChronicallyOverIt said:
I posted on the other thread but they have an ai now too, insane.

Beta Program & AI Disclosure - RTHM

Important information about RTHM's beta features and AI system limitations.
www.rthm.com www.rthm.com
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I thought I'd comment on it here to keep the other thread just for the LC guide discussion.

I'm not sure if this is the thing I saw a few months ago or something else. Basically, you could fill in all your data (symptoms, tests) and their AI model would give you suggestions for treatments and tests for free. I saw it recommended in some patient groups and I'm not even in the US. I think they got a lot of data from naive patients.
 
From Facebook

Join Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, and moderator Charlie McCone for a discussion on how to best manage and treat post-exertional malaise (PEM). Learn about the different types of PEM, how to navigate a crash, and interventions for reducing PEM.

WHEN: August 6th 2pm PST | 5 pm EST

Sign up here: https://ow.ly/nAvg50ZtEb8
 

In this webinar, Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, and Charlie McCone discuss how PEM presents in Long COVID and ME/CFS, what current research suggests may be happening in the body, and why crashes can look so different from person to person.

The conversation moves from understanding PEM to managing it. The panel shares practical approaches to pacing, reducing triggers, navigating a crash, and supporting baseline function, while also discussing emerging treatment strategies and areas of ongoing research.

This webinar is for educational purposes only and is not medical advice. Always consult a licensed clinician before starting, stopping, or changing any treatment.
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Timestamps:
0:00–8:45 Welcome, panelist introductions, and medical disclaimer
8:45–13:29 What PEM is, how it is defined, and how it differs from exercise intolerance
13:30–20:59 The different types of PEM, Dr. Jennifer Curtin on physical, cognitive, sensory, and emotional PEM triggers
21:00–23:29 Rolling PEM, push-crash cycles, and repeatedly exceeding the energy envelope
23:30–28:34 The pathophysiology of PEM, Dr. Lucinda Bateman on early PEM research and what happens after exertion
28:35–36:54 Dr. David Putrino on the new emerging PEM research on mitochondria, oxygen extraction, blood vessels, and inflammation
36:55–45:49 Pacing, energy conservation, environmental factors, air quality, weather, and digestion
45:50–51:29 Managing an acute or prolonged PEM crash with rest, reduced stimulation, and symptom support
51:30–57:19 Dr. Jennifer Curtin on IV saline and crash support, plus dextromethorphan for PEM
57:20–1:02:49 Dr. David Putrino on preventing PEM, supporting baseline function, and emerging treatments
1:02:50–1:07:59 Dr. Jennifer Curtin on treating cognitive vs. physical PEM and addressing dysautonomia
1:08:00–1:15:59 Sleep, orthostatic intolerance, MCAS, viral reactivation, IVIG, and autoimmunity
1:16:00–1:22:49 Audience questions on glucose, lactate, HRV, wearables, and predicting PEM crashes
1:22:50–1:27:49 Identifying delayed PEM triggers, finding your baseline, and distinguishing POTS from PEM
1:27:50–1:34:42 How to safely increase activity, test the energy envelope, and closing thoughts
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Chandelier said:
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Lucinda Bateman saying at 55 mins in that she is 'absolutely convinced' that dextromethorphan taken before and after particular exertion gives people 'a little more leeway' in avoiding PEM.

Is there anything to back that up about dextromethorphan? (I haven't watched the whole video, just skipped to that bit because I've been wondering about dextromethorphan and why it seems to stop me sleeping if I take cough syrup in the night!)
 
Eleanor said:
Is there anything to back that up about dextromethorphan? (I haven't watched the whole video, just skipped to that bit because I've been wondering about dextromethorphan and why it seems to stop me sleeping if I take cough syrup in the night!)
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Replying to myself, having looked up dextromethorphan - seems it interacts with amitriptyline, which I also take at a low dose for neuropathic pain and tremor. Higher overdoses can result in potentially fatal serotonin syndrome. Doctors encouraging patients to try dxm because it's easy to get over the counter (as Lucinda B says) should probably also encourage them to check for contraindications with anything else they may be taking.
 
Eleanor said:
Doctors encouraging patients to try dxm because it's easy to get over the counter (as Lucinda B says) should probably also encourage them to check for contraindications with anything else they may be taking.
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Agree. I looked it up after watching the webinar, and it has major interactions with SSRIs, including Fluoxetine. That would have been a problem for the person I was hoping could try it.

Incidentally, when I mentioned it to my family member with ME, he had an immediate “no way” response. Apparently he’s aware of significant abuse potential (particularly so for those on contraindicated meds which amplify the effects of dxm).

I found the webinar to have some helpful and potentially actionable information in it and found it well worth the time to watch it.
 
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