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What research do you want to see?

Discussion in 'General ME/CFS news' started by JohnTheJack, Jul 7, 2018.

  1. dreampop

    dreampop Senior Member (Voting Rights)

    Messages:
    443
    It sounds like something similar the OMF Melbourne study is doing - although not to the length and extent you propose.

     
    Michelle, Kitty, andypants and 5 others like this.
  2. cfsandmore

    cfsandmore Senior Member (Voting Rights)

    Messages:
    205
    Location:
    USA
    In the late 1990s, I gave lots of blood to be studied like this at the Hunter Hopkins Center in Charlotte, North Carolina. Dr. Chales Lapp was unable to find anything that pointed to my improvement. I hope 20 years later the OMF is able to find some clues.
     
    Kitty, Amw66, MEMarge and 1 other person like this.
  3. Andy

    Andy Committee Member

    Messages:
    21,810
    Location:
    Hampshire, UK
    Replication. In a way, the ME research field has it's own replication crisis, in that there are rarely attempts to independently replicate anything that is found. So I'd like to see efforts made to replicate all the things!
     
    Simbindi, Forbin, Michelle and 11 others like this.
  4. Ravn

    Ravn Senior Member (Voting Rights)

    Messages:
    2,044
    Location:
    Aotearoa New Zealand
    This! And again, for emphasis: THIS!!!

    Just how do we get funding for replication studies? The whole research ecosystem seems to be set up so that it's those chasing the latest and newest angle with the shiniest toys are the ones who get whatever little funding is available for biomedical ME research. Could the charities play a role by setting aside a certain percentage of their grants for replication studies?
     
    Simbindi, MEMarge, Hutan and 9 others like this.
  5. Mike Dean

    Mike Dean Senior Member (Voting Rights)

    Messages:
    147
    Location:
    York, UK
    Agreed, a scoping review of the thousands of studies ought to identify at least a few that deserve replication.
     
    Michelle, cfsandmore, mango and 2 others like this.
  6. Kitty

    Kitty Senior Member (Voting Rights)

    Messages:
    5,051
    Location:
    UK
    I wonder what might be the best approach to this? Some of our best-known researchers are pretty busy with the grants and research programmes that they have got, though I'm sure there are scientists among them who could find some time to devote to this.

    Would there be any value in recruiting (assuming funding could be found) a panel of experienced researchers who are sympathetic towards biomedical research on ME, but are at least one step removed from the work of the last few years? Perhaps they could bring some valuable perspective to a review of the evidence to date.
     
  7. Mike Dean

    Mike Dean Senior Member (Voting Rights)

    Messages:
    147
    Location:
    York, UK
    Maybe something for the PSP to make a case for. There would be several strands - in vitro, in vivo, clinical etc. Mapping where early research has foundered or moved to the next level would definitely be useful.
     
    MEMarge, Michelle, Andy and 3 others like this.
  8. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,530
    Location:
    Aotearoa New Zealand
  9. Andy

    Andy Committee Member

    Messages:
    21,810
    Location:
    Hampshire, UK
    Code:
    https://twitter.com/ahandvanish/status/1358816485674790913
    https://twitter.com/user/status/1358816485674790913
     
    Trish, MEMarge and rvallee like this.
  10. Snowdrop

    Snowdrop Senior Member (Voting Rights)

    Messages:
    2,134
    Location:
    Canada
    I'd be interested in having this replicated:

    https://www.sciencedirect.com/science/article/pii/S2467981X20300044

     
  11. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

    Messages:
    917
    Milo and Snowdrop like this.

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