HSE is Ireland not UK. Northern Ireland comes under NICE. A webinar has been arranged for GP's in Northern Ireland on ME to be given by NHS...
Is it worth trying to get more publicity about MAGENTA trial results?
Is the reduced cerebral blood flow secondary to the brain being less metabolically active?
I hope that you use it to ask questions about how we use the internet for practical support. On this forum there are threads on ready meals,...
Why would IVGHV3-30 not be elevated in severe ME/ CFS? Hypothetically speaking!
I do love those rare " ladder " days when one's body and brain feels light instead of cloaked in lead.
I think Minna was only ill for a matter of months and thought that positive thinking and lots of TLC had helped her recovery.
@JemPD @Sasha I was never asked to justify or explain my level of disability . If I had been asked I would have said something like this: are you...
@JemPD please copy it if it helps. Take in plenty of ear plugs because they get lost so easily in the bed.
@Sasha I don't think anyone I met understood orthostatic intolerance but they accepted that I needed to lie flat and my other needs and that was...
I needed surgery in 2021 and fortunately my local hospital has single rooms in the surgical ward and I also have support from my two sisters....
I would prefer orthostatic intolerance to be higher up the priority list because it informs how we pace ourselves, and leads into severe/ very...
What "campaign work" cost £48000?
Maybe the protocol should be published on Qeios to get it into the public domain as soon as possible.
Is it time for a joint initiative between the major charities to pay for a professional fundraising ?...
JK Rowling lives in Edinburgh maybe she would like to contribute?
I did wonder when Doctors withME was being developed whether it would have been better for Charles shepherd to recruit them to MEA to enhance the...
This also concerns me greatly.Riley and CS seem determined to ignore WHY the evidence-base that NICE produced.
Orthostatic intolerance is the SYMPTOM of feeling worse when in the upright position and needing to lie down. It doesn't have to have changes with...
MEA cannot promote both NICE guidelines and anecdotal evidence.
Separate names with a comma.
