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Science for ME

  1. Welcome to Science For ME

    About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.

    1. Welcome: About the Forum, Our Values

      Discussions:
      1
      Messages:
      1
      Latest: Welcome Science For ME, Apr 19, 2022
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  2. ME/CFS and Long Covid news

    A place to discuss news about ME/CFS and Long Covid.

    1. ME/CFS and Long Covid news

      A place to discuss news about ME/CFS and Long Covid.

      Discussions:
      2,702
      Messages:
      80,071

      1. General ME/CFS news

      2. ME/CFS research news

      3. Long Covid news

      4. Psychosomatic news - ME/CFS and Long Covid

      5. Regional news

      6. News from organisations

      7. Weekly ME news in brief

      Latest: UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022 bobbler, May 28, 2022 at 12:54 AM
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  3. ME/CFS and Long Covid research

    A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.

    1. ME/CFS and Long Covid research

      A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
      Discussions:
      2,241
      Messages:
      35,548

      1. ME/CFS research

      2. Long Covid research

      3. Psychosomatic research - ME/CFS and Long Covid

      4. Recruitment into current ME/CFS research studies

      Latest: Pre-Illness Data reveals Differences in Multiple Metabolites and Metabolic Pathways in Those Who Do and Do Not Recover from IM, 2022, Jason et al Hutan, May 28, 2022 at 12:22 AM
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  4. Other news and research

    A place to post and discuss other news and research relevant to people with ME/CFS

    1. Other news and research

      A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
      Discussions:
      4,003
      Messages:
      33,425

      1. 'Conditions related to ME/CFS' news and research

      2. Other psychosomatic news and research

      3. Research methodology news and research

      4. Other health news and research

      5. Epidemics (including Covid-19, not Long Covid)

      Latest: Is there any research into vaccinations being a trigger for ME/CFS? RoseE, May 28, 2022 at 12:33 AM
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  5. Resources

    1. Resources

      Discussions:
      55
      Messages:
      413

      1. Resources

      2. Science library (Read only)

      3. Training courses

      Latest: "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist bobbler, May 17, 2022
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  6. Advocacy and Fundraising

    A place to discuss advocacy and fundraising related to the ME/CFS community

    1. Advocacy

      Discussions:
      876
      Messages:
      16,880

      1. Advocacy Action Alerts

      2. General Advocacy Discussions

      3. General disability topics and advocacy

      4. Advocacy Projects and Campaigns

      5. Petitions

      6. Fundraising

      7. Open Letters and Replies

      8. MEpedia

      Latest: Help with Advocating Valerie Eliot Smith, May 27, 2022 at 10:34 PM
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  7. Guidelines, reviews and disease coding

    This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.

    1. ME/CFS related guidelines, reviews, disease coding

      'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
      Discussions:
      95
      Messages:
      10,002

      1. Disease coding

      2. 2021 Cochrane Exercise Therapy Review

      3. 2021 USA CDC ME/CFS Diagnosis and Treatment Review

      4. 2020 UK NICE ME/CFS Guideline

      5. 2020 UK NICE Long Covid Guideline

      6. Other guidelines with public consultation process

      7. Other reviews with a public consultation process

      Latest: New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al Sean, May 26, 2022 at 4:32 AM
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  8. Discussion topics

    1. Research quality and methodology discussions

      Discussions:
      81
      Messages:
      1,829

      1. Laboratory and genetic testing, medical imaging

      2. Physical testing (e.g. CPET, actimetry)

      3. Subjective outcome measures (questionnaires)

      4. Trial design including bias, placebo effect

      5. Other research methodology topics

      Latest: Are objective outcomes of cognitive function possible? alex3619, May 25, 2022 at 1:51 PM
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    2. Causes, Epidemiology, Criteria, Naming discussions

      Discussions:
      37
      Messages:
      1,382

      1. Possible causes and predisposing factor discussion

      2. Diagnostic Criteria and Naming Discussions

      3. Epidemiology (incidence, prevalence, prognosis)

      Latest: Is Long Covid a type of ME/CFS? Discussion thread Wyva, May 27, 2022 at 6:13 AM
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    3. Symptoms and signs discussions

      Discussions:
      434
      Messages:
      9,012

      1. General and other signs and symptoms

      2. Post-Exertional malaise and fatigue

      3. Pain and Inflammation

      4. Sleep Disturbance

      5. Cardiovascular and exercise physiology (CPET)

      6. Orthostatic intolerance

      7. Neurological/cognitive/vision

      8. Blood (e.g. coagulation, cell stiffness)

      9. Immunological

      10. Hypersensitivity and Intolerance Reactions

      11. Gastrointestinal and Urinary

      12. Cellular (mitochondria, metabolites, cytokines)

      Latest: Sleep problems in ME/CFS - discussion thread Binkie4, May 25, 2022 at 2:09 AM
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    4. Treatment discussions

      A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
      Discussions:
      237
      Messages:
      4,865

      1. Drug and supplement treatments

      2. Orthostatic intolerance treatments

      3. Nutrition, food sensitivity, microbiome treatments

      4. Other treatments

      Latest: Aphaeresis/ Apheresis (for removal of microclots) Jonathan Edwards, May 27, 2022 at 10:30 AM
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    5. Psychosomatic theories and treatments discussions

      A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
      Discussions:
      34
      Messages:
      1,140
      Latest: ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine bobbler, May 3, 2022
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    6. Other specific illnesses discussions

      A place to discuss alternative diagnoses and possible co-morbidities
      Discussions:
      175
      Messages:
      2,672

      1. Fibromyalgia and Connective Tissue Disorders

      2. Infections: Lyme, Candida, EBV ...

      3. Endocrine: Thyroid, Adrenal, Diabetes

      4. Immune: Autoimmune and Mast Cell Disorders

      5. Neurological diseases

      6. Vitamin B12, D and other deficiencies

      7. Gulf War Illness

      8. Other specific illnesses

      Latest: EDS, hypermobility, and the link, if any, to ME/CFS josepdelafuente, May 22, 2022 at 10:56 AM
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    7. Doctors, clinics and organisations discussions

      Discussions:
      75
      Messages:
      2,696

      1. General clinical care

      2. USA clinics and doctors

      3. UK clinics and doctors

      4. Other clinics and doctors

      Latest: ME/CFS services in the United Kingdom CRG, May 26, 2022 at 11:42 AM
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    8. Living with ME/CFS discussions

      Discussions:
      269
      Messages:
      4,732

      1. Home adaptations, mobility and personal care

      2. Relationships and coping

      3. Monitoring and pacing

      4. Work, Finances and Disability Insurance

      5. Caregiver support

      Latest: Specific documents on CFS and fibromyalgia from a US agency (Job Accommodation Network) (2008) Denise, May 28, 2022 at 12:19 AM
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    9. General ME/CFS discussions

      For discussion topics that don't fit any of the named discussion forums.
      Discussions:
      3
      Messages:
      76

      1. General ME/CFS discussion

      Latest: Trading Lifespan For Health ukxmrv, May 27, 2022 at 5:42 PM
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