1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
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  2. Guest, the 'News in Brief' for the week beginning 18th September 2023 is here.
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Science for ME

  1. Welcome to Science For ME

    About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.

    1. Welcome: About the Forum, Our Values

      Discussions:
      1
      Messages:
      1
      Latest: Welcome Science For ME, Apr 19, 2022
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  2. ME/CFS and Long Covid news

    A place to discuss news about ME/CFS and Long Covid.

    1. ME/CFS and Long Covid news

      A place to discuss news about ME/CFS and Long Covid.

      Discussions:
      3,036
      Messages:
      91,981

      1. General ME/CFS news

      2. ME/CFS research news

      3. Long Covid news

      4. Psychosomatic news - ME/CFS and Long Covid

      5. Regional news

      6. News from organisations

      7. Weekly ME news in brief

      Latest: News from Australia oldtimer, Sep 27, 2023 at 2:03 AM
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  3. ME/CFS and Long Covid research

    A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.

    1. ME/CFS and Long Covid research

      A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
      Discussions:
      3,719
      Messages:
      47,233

      1. ME/CFS research

      2. Long Covid research

      3. Psychosomatic research - ME/CFS and Long Covid

      4. Recruitment into current ME/CFS research studies

      Latest: How methodological pitfalls have created widespread misunderstanding about long COVID, 2023, Høeg, Ladhani, Prasad Sean, Sep 27, 2023 at 1:36 AM
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  4. Other news and research

    A place to post and discuss other news and research relevant to people with ME/CFS

    1. Other news and research

      A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
      Discussions:
      5,586
      Messages:
      45,857

      1. 'Conditions related to ME/CFS' news and research

      2. Other psychosomatic news and research

      3. Research methodology news and research

      4. Other health news and research

      5. Epidemics (including Covid-19, not Long Covid)

      Latest: UK rare disease research landscape mapped for first time SNT Gatchaman, Sep 27, 2023 at 12:52 AM
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  5. Resources

    1. Resources

      Discussions:
      120
      Messages:
      1,027

      1. Resources

      2. Historical Documents

      3. Science library (Read only)

      4. Training courses

      Latest: Information leaflet on ME/CFS and children/young people either for patients or for doctors? Evergreen, Sep 26, 2023 at 12:17 AM
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  6. Advocacy and Fundraising

    A place to discuss advocacy and fundraising related to the ME/CFS community

    1. Advocacy

      Discussions:
      971
      Messages:
      18,725

      1. Advocacy Action Alerts

      2. General Advocacy Discussions

      3. General disability topics and advocacy

      4. Advocacy Projects and Campaigns

      5. Petitions

      6. Fundraising

      7. Open Letters and Replies

      8. MEpedia

      Latest: Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review Hutan, Sep 27, 2023 at 1:37 AM
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  7. Guidelines, reviews and disease coding

    This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.

    1. ME/CFS related guidelines, reviews, disease coding

      'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
      Discussions:
      105
      Messages:
      11,455

      1. Disease coding

      2. 2021 Cochrane Exercise Therapy Review

      3. 2021 USA CDC ME/CFS Diagnosis and Treatment Review

      4. 2020 UK NICE ME/CFS Guideline

      5. 2020 UK NICE Long Covid Guideline

      6. Other guidelines

      7. Other reviews with a public consultation process

      Latest: Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al RedFox, Sep 24, 2023 at 4:17 PM
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  8. Discussion topics

    1. Research quality and methodology discussions

      Discussions:
      149
      Messages:
      2,535

      1. Laboratory and genetic testing, medical imaging

      2. Physical testing (e.g. CPET, actimetry)

      3. Subjective outcome measures (questionnaires)

      4. Trial design including bias, placebo effect

      5. Other research methodology topics

      Latest: Guidance to best tools and practices for systematic reviews, 2023 Sly Saint, Aug 30, 2023
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    2. Causes, Epidemiology, Criteria, Naming discussions

      Discussions:
      61
      Messages:
      1,972

      1. Possible causes and predisposing factor discussion

      2. Diagnostic Criteria and Naming Discussions

      3. Epidemiology (incidence, prevalence, prognosis)

      Latest: The itaconate shunt hypothesis Andy, Sep 16, 2023
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    3. Symptoms and signs discussions

      Discussions:
      504
      Messages:
      10,071

      1. General and other signs and symptoms

      2. Post-Exertional malaise and fatigue

      3. Pain and Inflammation

      4. Sleep Disturbance

      5. Cardiovascular and exercise physiology (CPET)

      6. Orthostatic intolerance

      7. Neurological/cognitive/vision

      8. Blood (e.g. coagulation, cell stiffness)

      9. Immunological

      10. Hypersensitivity and Intolerance Reactions

      11. Gastrointestinal and Urinary

      12. Cellular (mitochondria, metabolites, cytokines)

      Latest: Recording: GI Friendly Cooking Demo and Discussion (IBS Patient Support Group) Dolphin, Sep 23, 2023 at 11:42 PM
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    4. Treatment discussions

      A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
      Discussions:
      273
      Messages:
      5,719

      1. Drug and supplement treatments

      2. Orthostatic intolerance treatments

      3. Nutrition, food sensitivity, microbiome treatments

      4. Other treatments

      Latest: Annie Hoppers Dynamic Neural Retraining System Sean, Sep 18, 2023
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    5. Psychosomatic theories and treatments discussions

      A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
      Discussions:
      48
      Messages:
      2,180
      Latest: The Chrysalis Effect bobbler, Sep 13, 2023
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    6. Other specific illnesses discussions

      A place to discuss alternative diagnoses and possible co-morbidities
      Discussions:
      226
      Messages:
      3,002

      1. Fibromyalgia and Connective Tissue Disorders

      2. Infections: Lyme, Candida, EBV ...

      3. Endocrine: Thyroid, Adrenal, Diabetes

      4. Immune: Autoimmune and Mast Cell Disorders

      5. Neurological diseases

      6. Vitamin B12, D and other deficiencies

      7. Gulf War Illness

      8. Other specific illnesses

      Latest: Famous people diagnosed with neurological diseases Mij, Sep 22, 2023 at 3:23 PM
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    7. Doctors, clinics and organisations discussions

      Discussions:
      183
      Messages:
      4,939

      1. General clinical care

      2. USA clinics and doctors

      3. UK clinics and doctors

      4. Other clinics and doctors

      5. Organisations relevant to ME/CFS and Long Covid

      Latest: UK: Harrogate and District NHS: Living with Pain and Chronic Fatigue Syndrome/ME Service MEMarge, Sep 21, 2023 at 9:12 AM
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    8. Living with ME/CFS discussions

      Discussions:
      302
      Messages:
      5,885

      1. Home adaptations, mobility and personal care

      2. Relationships and coping

      3. Monitoring and pacing

      4. Work, Finances and Disability Insurance

      5. Caregiver support

      Latest: UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment) Sean, Sep 27, 2023 at 1:39 AM
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    9. General ME/CFS discussions

      For discussion topics that don't fit any of the named discussion forums.
      Discussions:
      39
      Messages:
      772

      1. General ME/CFS discussion

      Latest: Does ME/CFS cause permanent damage? Discussion thread LarsSG, Sep 27, 2023 at 1:47 AM
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