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Science for ME
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Welcome to Science For ME
About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.
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Welcome: About the Forum, Our Values
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- Messages:
- 1
Latest: Welcome Science For ME, Apr 19, 2022
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ME/CFS and Long Covid news
A place to discuss news about ME/CFS and Long Covid.
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ME/CFS and Long Covid news
A place to discuss news about ME/CFS and Long Covid.
- Discussions:
- 3,036
- Messages:
- 91,981
Latest: News from Australia oldtimer, Sep 27, 2023 at 2:03 AM
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ME/CFS and Long Covid research
A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
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ME/CFS and Long Covid research
A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
- Discussions:
- 3,719
- Messages:
- 47,233
Latest: How methodological pitfalls have created widespread misunderstanding about long COVID, 2023, Høeg, Ladhani, Prasad Sean, Sep 27, 2023 at 1:36 AM
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Other news and research
A place to post and discuss other news and research relevant to people with ME/CFS
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Other news and research
A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
- Discussions:
- 5,586
- Messages:
- 45,857
Latest: UK rare disease research landscape mapped for first time SNT Gatchaman, Sep 27, 2023 at 12:52 AM
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Resources
- Discussions:
- 120
- Messages:
- 1,027
Latest: Information leaflet on ME/CFS and children/young people either for patients or for doctors? Evergreen, Sep 26, 2023 at 12:17 AM
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Advocacy and Fundraising
A place to discuss advocacy and fundraising related to the ME/CFS community
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Advocacy
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- 971
- Messages:
- 18,725
Latest: Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review Hutan, Sep 27, 2023 at 1:37 AM
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Guidelines, reviews and disease coding
This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.
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ME/CFS related guidelines, reviews, disease coding
'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
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- 105
- Messages:
- 11,455
Latest: Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al RedFox, Sep 24, 2023 at 4:17 PM
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Research quality and methodology discussions
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- 149
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- 2,535
Latest: Guidance to best tools and practices for systematic reviews, 2023 Sly Saint, Aug 30, 2023 -
Causes, Epidemiology, Criteria, Naming discussions
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- 61
- Messages:
- 1,972
Latest: The itaconate shunt hypothesis Andy, Sep 16, 2023 -
Symptoms and signs discussions
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- 504
- Messages:
- 10,071
Latest: Recording: GI Friendly Cooking Demo and Discussion (IBS Patient Support Group) Dolphin, Sep 23, 2023 at 11:42 PM -
Treatment discussions
A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
- Discussions:
- 273
- Messages:
- 5,719
Latest: Annie Hoppers Dynamic Neural Retraining System Sean, Sep 18, 2023 -
Psychosomatic theories and treatments discussions
A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
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- Messages:
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Latest: The Chrysalis Effect bobbler, Sep 13, 2023 -
Other specific illnesses discussions
A place to discuss alternative diagnoses and possible co-morbidities
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- Messages:
- 3,002
Latest: Famous people diagnosed with neurological diseases Mij, Sep 22, 2023 at 3:23 PM -
Doctors, clinics and organisations discussions
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- 183
- Messages:
- 4,939
Latest: UK: Harrogate and District NHS: Living with Pain and Chronic Fatigue Syndrome/ME Service MEMarge, Sep 21, 2023 at 9:12 AM -
Living with ME/CFS discussions
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- 302
- Messages:
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General ME/CFS discussions
For discussion topics that don't fit any of the named discussion forums.
- Discussions:
- 39
- Messages:
- 772
Latest: Does ME/CFS cause permanent damage? Discussion thread LarsSG, Sep 27, 2023 at 1:47 AM
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