Science for ME

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Welcome to Science For ME

About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.

Welcome: About the Forum, Our Values

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Science For ME
Welcome
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1
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2

ME/CFS and Long Covid news

A place to discuss news about ME/CFS and Long Covid.

ME/CFS and Long Covid news

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110.5K
Utsikt
Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

A place to discuss news about ME/CFS and Long Covid.

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3.4K
Messages
110.5K
Sub-forums:
  1. General ME/CFS news
  2. ME/CFS research news
  3. Long Covid news
  4. Psychosomatic news - ME/CFS and Long Covid
  5. Regional news
  6. News from organisations
  7. Weekly ME news in brief

ME/CFS and Long Covid research

A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.

ME/CFS and Long Covid research

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6K
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71.1K
rvallee
Hypothesis Long Vax is delayed onset Long COVID, 2025, Bunker
A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
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6K
Messages
71.1K
Sub-forums:
  1. ME/CFS research
  2. Long Covid research
  3. Psychosomatic research - ME/CFS and Long Covid
  4. Recruitment into current ME/CFS research studies

Other news and research

A place to post and discuss other news and research relevant to people with ME/CFS

Other news and research

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7.5K
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57.7K
Jonathan Edwards
Energy expenditure and obesity across the economic spectrum, McGrosky et al. 2025
A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
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7.5K
Messages
57.7K
Sub-forums:
  1. 'Conditions related to ME/CFS' news and research
  2. Other psychosomatic news and research
  3. Research methodology news and research
  4. Other health news and research
  5. Epidemics (including Covid-19, not Long Covid)

Resources

Resources

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191
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2.2K
Peter T
Translating S4ME Fact Sheets into French
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191
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2.2K
Sub-forums:
  1. Resources
  2. Historical Documents
  3. Fact Sheets
  4. Science library (Read only)
  5. Training courses

Advocacy and Fundraising

A place to discuss advocacy and fundraising related to the ME/CFS community

Advocacy

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Utsikt
What Doesn't Kill You [Forthcoming Documentary]
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22.7K
Sub-forums:
  1. Advocacy Action Alerts
  2. General Advocacy Discussions
  3. General disability topics and advocacy
  4. Advocacy Projects and Campaigns
  5. Petitions
  6. Fundraising
  7. Open Letters and Replies
  8. MEpedia

Guidelines, reviews and disease coding This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.

ME/CFS related guidelines, reviews, disease coding

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122
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13.3K
Utsikt
Norwegian guidelines in development: help with a literature search
'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
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122
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13.3K
Sub-forums:
  1. Disease coding
  2. 2021 Cochrane Exercise Therapy Review
  3. 2021 USA CDC ME/CFS Diagnosis and Treatment Review
  4. 2020 UK NICE ME/CFS Guideline
  5. 2020 UK NICE Long Covid Guideline
  6. Other guidelines
  7. Other reviews with a public consultation process

Discussion topics

Research quality and methodology discussions

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208
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4.3K
rvallee
The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app
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208
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4.3K
Sub-forums:
  1. Laboratory and genetic testing, medical imaging
  2. Physical testing (e.g. CPET, actimetry)
  3. Subjective outcome measures (questionnaires)
  4. Trial design including bias, placebo effect
  5. Other research methodology topics

Causes, Epidemiology, Criteria, Naming discussions

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104
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nataliezzz
Upper Airway Resistance Syndrome (UARS): a common underlying cause for all "chronic complex illnesses"? (ME/CFS, fibro, GWI, etc.)
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104
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3.8K
Sub-forums:
  1. Possible causes and predisposing factor discussion
  2. Diagnostic Criteria and Naming Discussions
  3. Epidemiology (incidence, prevalence, prognosis)

Symptoms and signs discussions

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614
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13.7K
jnmaciuch
PEM discussion thread - post-exertional malaise
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614
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13.7K
Sub-forums:
  1. General and other signs and symptoms
  2. Post-Exertional malaise and fatigue
  3. Pain and Inflammation
  4. Sleep Disturbance
  5. Cardiovascular and exercise physiology (CPET)
  6. Orthostatic intolerance
  7. Neurological/cognitive/vision
  8. Blood (e.g. coagulation, cell stiffness)
  9. Immunological
  10. Hypersensitivity and Intolerance Reactions
  11. Gastrointestinal and Urinary
  12. Cellular (mitochondria, metabolites, cytokines)

Treatment discussions

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332
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7.6K
jnmaciuch
Malic acid supplement, sumac
A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
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332
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7.6K
Sub-forums:
  1. Drug and supplement treatments
  2. Orthostatic intolerance treatments
  3. Nutrition, food sensitivity, microbiome treatments
  4. Other treatments

Psychosomatic theories and treatments discussions

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64
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rvallee
Functional Neurological Disorder (FND) - articles, social media and discussion
A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
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64
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3.4K

Other specific illnesses discussions

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293
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3.6K
Utsikt
MRGPRX2 Mediates Mast Cell-Induced Endometriosis Pain Through the Sensitization of Sensory Neurons via Histamine/HRH1/TRPV1 Signaling…, 2025, Mao+
A place to discuss alternative diagnoses and possible co-morbidities
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293
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3.6K
Sub-forums:
  1. Fibromyalgia and Connective Tissue Disorders
  2. Infections: Lyme, Candida, EBV ...
  3. Endocrine: Thyroid, Adrenal, Diabetes
  4. Immune: Autoimmune and Mast Cell Disorders
  5. Neurological diseases
  6. Vitamin B12, D and other deficiencies
  7. Gulf War Illness
  8. Other specific illnesses

Doctors, clinics and organisations discussions

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261
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forestglip
So Your Doctor Is a D.O. Does That Matter?
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261
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8K
Sub-forums:
  1. General clinical care
  2. USA clinics and doctors
  3. UK clinics and doctors
  4. Other clinics and doctors
  5. Organisations relevant to ME/CFS and Long Covid

Living with ME/CFS discussions

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366
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8.2K
MrMagoo
UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025
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366
Messages
8.2K
Sub-forums:
  1. Home adaptations, mobility and personal care
  2. Relationships and coping
  3. Monitoring and pacing
  4. Work, Finances and Disability Insurance
  5. Caregiver support

General ME/CFS discussions

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103
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Yann04
If an effective treatment comes along for ME/CFS, how can we physically rehabilitate ourselves?
For discussion topics that don't fit any of the named discussion forums.
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103
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3.4K
Sub-forums:
  1. General ME/CFS discussion

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