1. Guest, the two part 'News in Brief' for the week beginning 20th March 2023 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Science for ME

  1. Welcome to Science For ME

    About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.

    1. Welcome: About the Forum, Our Values

      Discussions:
      1
      Messages:
      1
      Latest: Welcome Science For ME, Apr 19, 2022
      RSS

  2. ME/CFS and Long Covid news

    A place to discuss news about ME/CFS and Long Covid.

    1. ME/CFS and Long Covid news

      A place to discuss news about ME/CFS and Long Covid.

      Discussions:
      2,905
      Messages:
      86,872

      1. General ME/CFS news

      2. ME/CFS research news

      3. Long Covid news

      4. Psychosomatic news - ME/CFS and Long Covid

      5. Regional news

      6. News from organisations

      7. Weekly ME news in brief

      Latest: Long Covid in the media and social media 2023 rvallee, Mar 26, 2023 at 3:59 PM
      RSS

  3. ME/CFS and Long Covid research

    A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.

    1. ME/CFS and Long Covid research

      A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
      Discussions:
      3,166
      Messages:
      42,328

      1. ME/CFS research

      2. Long Covid research

      3. Psychosomatic research - ME/CFS and Long Covid

      4. Recruitment into current ME/CFS research studies

      Latest: Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al Mij, Mar 26, 2023 at 3:59 PM
      RSS

  4. Other news and research

    A place to post and discuss other news and research relevant to people with ME/CFS

    1. Other news and research

      A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
      Discussions:
      4,955
      Messages:
      38,647

      1. 'Conditions related to ME/CFS' news and research

      2. Other psychosomatic news and research

      3. Research methodology news and research

      4. Other health news and research

      5. Epidemics (including Covid-19, not Long Covid)

      Latest: Emotion regulation and the salience network: a hypothetical integrative model of fibromyalgia, Margarida Pinto et al 2022 Andy, Mar 26, 2023 at 10:31 AM
      RSS

  5. Resources

    1. Resources

      Discussions:
      90
      Messages:
      726

      1. Resources

      2. Science library (Read only)

      3. Training courses

      Latest: UK: Action for ME: Media Guidelines for reporting on M.E. Trish, Mar 20, 2023 at 5:51 PM
      RSS

  6. Advocacy and Fundraising

    A place to discuss advocacy and fundraising related to the ME/CFS community

    1. Advocacy

      Discussions:
      940
      Messages:
      17,963

      1. Advocacy Action Alerts

      2. General Advocacy Discussions

      3. General disability topics and advocacy

      4. Advocacy Projects and Campaigns

      5. Petitions

      6. Fundraising

      7. Open Letters and Replies

      8. MEpedia

      Latest: United Kingdom: Independent SAGE Ariel, Mar 26, 2023 at 3:05 PM
      RSS

  7. Guidelines, reviews and disease coding

    This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.

    1. ME/CFS related guidelines, reviews, disease coding

      'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
      Discussions:
      99
      Messages:
      10,574

      1. Disease coding

      2. 2021 Cochrane Exercise Therapy Review

      3. 2021 USA CDC ME/CFS Diagnosis and Treatment Review

      4. 2020 UK NICE ME/CFS Guideline

      5. 2020 UK NICE Long Covid Guideline

      6. Other guidelines

      7. Other reviews with a public consultation process

      Latest: UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion Tom Kindlon, Mar 25, 2023 at 11:56 PM
      RSS

  8. Discussion topics

    1. Research quality and methodology discussions

      Discussions:
      124
      Messages:
      2,257

      1. Laboratory and genetic testing, medical imaging

      2. Physical testing (e.g. CPET, actimetry)

      3. Subjective outcome measures (questionnaires)

      4. Trial design including bias, placebo effect

      5. Other research methodology topics

      Latest: Working together: reflections on how to make public involvement in research work 2023 McVey et al Andy, Mar 26, 2023 at 10:38 AM
      RSS

    2. Causes, Epidemiology, Criteria, Naming discussions

      Discussions:
      55
      Messages:
      1,827

      1. Possible causes and predisposing factor discussion

      2. Diagnostic Criteria and Naming Discussions

      3. Epidemiology (incidence, prevalence, prognosis)

      Latest: Degree of improvement in ME Yvonne, Mar 20, 2023 at 10:00 AM
      RSS

    3. Symptoms and signs discussions

      Discussions:
      474
      Messages:
      9,760

      1. General and other signs and symptoms

      2. Post-Exertional malaise and fatigue

      3. Pain and Inflammation

      4. Sleep Disturbance

      5. Cardiovascular and exercise physiology (CPET)

      6. Orthostatic intolerance

      7. Neurological/cognitive/vision

      8. Blood (e.g. coagulation, cell stiffness)

      9. Immunological

      10. Hypersensitivity and Intolerance Reactions

      11. Gastrointestinal and Urinary

      12. Cellular (mitochondria, metabolites, cytokines)

      Latest: Is there anything at all that can be done for food intolerances? Hubris, Mar 22, 2023 at 3:27 PM
      RSS

    4. Treatment discussions

      A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
      Discussions:
      262
      Messages:
      5,519

      1. Drug and supplement treatments

      2. Orthostatic intolerance treatments

      3. Nutrition, food sensitivity, microbiome treatments

      4. Other treatments

      Latest: Low dose Naltrexone - How might it work biologically in ME/CFS? Mister Person, Mar 25, 2023 at 4:04 AM
      RSS

    5. Psychosomatic theories and treatments discussions

      A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
      Discussions:
      44
      Messages:
      1,766
      Latest: Central sensitisation theory - discussion thread CRG, Mar 23, 2023 at 10:38 AM
      RSS

    6. Other specific illnesses discussions

      A place to discuss alternative diagnoses and possible co-morbidities
      Discussions:
      201
      Messages:
      2,809

      1. Fibromyalgia and Connective Tissue Disorders

      2. Infections: Lyme, Candida, EBV ...

      3. Endocrine: Thyroid, Adrenal, Diabetes

      4. Immune: Autoimmune and Mast Cell Disorders

      5. Neurological diseases

      6. Vitamin B12, D and other deficiencies

      7. Gulf War Illness

      8. Other specific illnesses

      Latest: Neuropsychological assessment detects patterns of dysfunction associated with brain injury livinglighter, Mar 25, 2023 at 7:57 PM
      RSS

    7. Doctors, clinics and organisations discussions

      Discussions:
      143
      Messages:
      4,314

      1. General clinical care

      2. USA clinics and doctors

      3. UK clinics and doctors

      4. Other clinics and doctors

      5. Organisations relevant to ME/CFS and Long Covid

      Latest: USA: Cleveland Clinic Mij, Mar 26, 2023 at 3:12 PM
      RSS

    8. Living with ME/CFS discussions

      Discussions:
      286
      Messages:
      5,382

      1. Home adaptations, mobility and personal care

      2. Relationships and coping

      3. Monitoring and pacing

      4. Work, Finances and Disability Insurance

      5. Caregiver support

      Latest: US - The Sleepy Girl Guide to Social Security Disability livinglighter, Mar 26, 2023 at 12:58 PM
      RSS

    9. General ME/CFS discussions

      For discussion topics that don't fit any of the named discussion forums.
      Discussions:
      25
      Messages:
      538

      1. General ME/CFS discussion

      Latest: Published poetry books by people with ME/CFS Tom Kindlon, Mar 25, 2023 at 10:05 PM
      RSS