DELAYS IN RECEIVING PIP FORM BY POST I have finally got round to applying for the mobility element of PIP because of the limitations relating to...
Her cognitive impairment was huge. Prior to developing ME, after viral labyrihthitis, she had been studying Maths and other A levels. She had 3...
This is the message that LCA (Long Covid Advocacy) are promoting: 'Over 2 million people are suffering from Long Covid, facing debilitating...
My daughter, who has ME has found that Daridorexant, the orexin (wakefulness) receptor inhibitor helpful for her sleep. Her delayed sleep onset...
Summary of the process: https://docs.google.com/document/d/1r4xXiJvxXn2UUy2YgrIleUKOOsOAOhVGSsQVwbEYjE0/edit?tab=t.0
It has absolutely nothing alongside his name under 'field of business', which seems appropriate to me.
Well done. Is she a member of the APPG?
BACME have recently recruited another carer to this group. I do not know any background to this guy, other than he is the same carer group as Ceri...
Apologies if this has been mentioned and/or is in the wrong place. This Long Covid article includes numerous videos and narratives about...
Figure 3 in their paper shows that concentration of the Herpes virus DNA was highest for HHV-7, than HSV-1, EBV and HHV6B. "To investigate viral...
Excellent video, thanks for sharing. He mentions palpitations when walking a few feet in his garden in the garden. Some POTS meds might well...
Another great video Adam and thanks to John for your work as well
Does include Nathalie Hilliard, one of the 4 Physios for ME and a person from LC Scotland in the authors. Uses HR monitoring: "During enrolment...
@MBailey has anyone from ForwardME been invited?
Sometimes I find it useful to use other terms eg when explaining the issues to HCPs, DWP, some friends etc. This is from MEpedia:...
Not a magic recovery story: "Over time, Clarke slowly found her way back to writing. She learned to manage her symptoms, and discovered she could...
Can you get those using a 3D printer?
How are we going to get that evidence? You won't find many volunteers to test out the theory. We know that Whitney needs Ativan to survive trips...
Thank you so much @MBailey
People who know about s/vs ME (such as 25%) were involved in the working group and workshops for the Living with ME stream, and submitted very...
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