Ah good, came across it on Bluesky and forgot to post it here. They're referring to an earlier video Robert Phair did a lot. Does anyone know...
I feel researchers are creating hype to pull in funding. At least some of them. Giving the deplorable level of funding the disease is getting I...
https://mecentraal.wordpress.com/2024/09/30/oproep-vragen-aan-ruud-raijmakers/#more-32165 ME centraal is asking people to send in questions for...
My Dutch lawyer also told me it was easier to get disability benefits with a psychiatric diagnosis. I was lucky to have heard some cautionary...
I hope more of her colleagues pick it up then. Would be of great help if there'd finally be a good counter to the BPS narrative.
Definitely, we have 5 or so in the Netherlands and it's a pain to find out who to align with and who to donate to. If they even actively search...
[MEDIA] Small thread about it with some comments from an MIT researcher. In response to what Davis was saying and what Ely David is doing with...
https://solvecfs.org/research-and-registry/ramsay-research-grants/meet-the-researchers/vincent-lombardi/ Are there any publications out on this...
More than 2000 comments on the piece. A lot of patients etc. chiming in. Good to see.
Don't have the energy, but I don't believe it would be for nothing. That's my opinion on most advocacy. Some of it might not bear fruit now, but...
It's something I could've said at some point, before learning better. This forum does a great job in educating, but it also might give a distorted...
I feel we shouldn't hold these people to any manner of consistency or other sorts of scrutiny. It might make them look silly.
I disagree.
Great article indeed.
The guy that first diagnosed me told me there was nothing he could to help me. Which is devastating but also absolutely fair imo. I think a lack...
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
If we're pitching theories, I think it's just lord Chtulhu working in nefarious ways.
Just a throwaway comment not particularly to do with this. I see webinars, inquiries etc. at a volume I don't think I've ever seen before. Am I...
There are a number of problems donating to individual projects for me. I'd first have to vet it as you point out, for which I like skills and...
[MEDIA] A new round of subsidies by ZonMw, researchers are forced to collaborate with at least one of the consortia that previously got...
Separate names with a comma.
