A small "mourning walk" took place in Berlin on 8 August to mark Severe ME Day. The participants were dressed in black, with ear protection,...
The German ME/CFS Association has now published additional professional press photos. This time of a young person with ME/CFS and her...
Postcard campaign to IQWIG and the Federal Ministry of Health (which commissioned the report): "All I want for Christmas is an IQWiG report on...
The Cochrane page "Stakeholder engagement in high-profile reviews pilot" has not been updated with a single sentence for over a year. I check it...
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The German ME/CFS Association and Long COVID Germany have submitted a "National Action Plan on ME/CFS and Post-COVID Syndrome" to the Federal...
Before the hearing started, over 230 messages from pwME and their loved ones were handed over to the committee members. This had to be done by the...
I found the opening statement, for which there was only 5 minutes, an excellent summary and introduction. So here is an English translation:
The German ME/CFS Association has published an article on the hearing with further links (German): https://www.mecfs.de/anhoerung-petition/...
Announcement by the team #SIGNforMECFS. Prof. Scheibenbogen from the Charité will also take part. [MEDIA] Edited to add translation of the...
The hearing on the #SIGNforMECFS petition will take place on Monday 14 February at 12 noon (German time) in the Bundestag. The session will be...
Signed.
The German Association for ME/CFS and Long COVID Germany cooperated to get ME/CFS and Long COVID into the coalition agreement of the new German...
The German petition was written and organized by four (severely affected) pwME. You can find them here: https://signformecfs.com/#team-1
Press release by the team of SIGN for ME/CFS in English: https://www.signformecfs.com/downloads/signformecfs-presseinformation-2021-11-16-EN.pdf...
This is what I know about the Geman petition: - The petitioners have created a website in German and English for the petition - with information,...
Just found out that there's an English translation of the petition:...
In addition to 57,766 signatures online, 35,267 signatures were collected on lists. The final result is 93,033 signatures collected in 28 days....
The petition ended after 28 days with 57,766 signatures online. The signatures on paper lists will be added, they're still being counted by the...
[MEDIA]
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