Thank you all for your kind words!
I know that the whole ME/CFS section was rewritten last year, but I am no longer well enough to go through it. It would definitely be worthwhile...
Thanks, Tom!
I have never met Dr Walitt, but I have met Dr Nath. I think that you may be overestimating the influence of Dr Walitt’s previous views on the...
I’m feeling a bit like a contrarian, but I think that you are underestimating the respect and authority that Dr. Collins carried as Director of...
I actually don’t think that this is true. The scientific community knows that intramural studies at NIH are rare and often small, but deep. From...
My apologies - I am very crashed and had trouble reading all that was written above, so please forgive me if all of this was said. But I wanted...
No one gets everything right. Questions, question and more questions is the only way to reach a higher level of scientific rigor. Even the most...
Having closed meetings makes sense to me. It gives them a chance to throw out ideas and have other people shoot them down if they are unsound. Our...
Absolutely true. We are looking at a slide with absolutely no context that was presented at a closed meeting. It was probably a mistake for...
Thanks, Andy. They are aware.
I know that I have said this many times before, but if they can do a pilot study and get good results, hopefully published results, the likelihood...
In fact, this isn’t surprising since Congress allocated the funding specifically for Long COVID. It would be possible to be more inclusive of...
They have said it a bunch of times. Here’s one: “In fact, at an NIH RECOVER initiative public briefing on September 15th where a $470M grantto NYU...
The only problem is that the $1.15B is for Long COVID. If we are lucky, some of the work will also help us, but I really hate depending on luck....
I hope that Solve will ask serious questions about Ampligen. I completely want guaranteed access for those patients who have left their homes and...
Thanks so much, Tom. We did each try to emphasize a different aspect of this disease.
I know that it’s different in the UK, but most people in the US have no idea what ME is. In fact, I would argue that most patients in the US don’t...
I haven’t read this one myself, but I have seen it mentioned positively. How Many Marbles Do YOU Have?: Helping Children Understand The...
From my own experience with my daughter who became ill with ME in high school and remained ill until she was fortunate enough to have the well...
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