I like ME/CFS Scrutinizer the most of the alternatives so far. I agree with others that 'ME/CFS Science' is too generic and neutral. I could...
I’m like others here who posted that they thought the title meant you were skeptical of the biomedical basis of ME/CFS. Once I read the content...
I relate to this a lot. The more I am upright, the more I feel the need to then lie flat. And the longer I am upright, the longer I need to lie...
I was reading Hal Walker's blog today (he has ME/CFS and writes about living with the illness), and it reminded me of this thread so I thought I...
They are both bad in different ways. BPS approach has had a big impact on research funding and attitudes of clinicians and public. We could be...
ugh
It’s good she is bringing attention to Patient Led and the role of the larger patient community in moving the long COVID field forward. However,...
I would be curious to know your reaction to the meeting, @Dakota15 and others. I came away feeling more frustration than hope. We are almost 5...
Drinking alcohol seems to make my OI worse. I also tend to have worse sleep on nights where I’ve had alcohol, especially in the evening....
Yes, it can be a tricky situation, can’t it? And how you explain or don’t explain yourself can depend on a lot of factors like who the person is,...
Does anyone know what “non-invasive objective measures” Todd Davenport was referring to in the panel today? It wasn’t clear to me whether he meant...
I know very few people mask in public nowadays, but it's still surprising to me to see so few people (who study long covid!) at this meeting...
This is a nice post that compliments the post on deconditioning well. The quote that you included from the S4ME member really captured an...
I have the same symptom and question. I don’t know what the correct answer is either. I also liken it to the lactic acid burn of max reps during...
Agree. Proliferation of such nonsense is a sad and preventable outcome of society’s failure to invest in ME and find actual explanations and...
“When they’ve finished with it”! That made me giggle.
I have been having trouble keeping up with all the posts on the recent OI/POTs threads, so it's nice to have some things summarized in one...
Please NIH prove me wrong with your actions because the empty talk and 'wait and you'll see how hard we're working!' approach is just not doing it...
I don't have experience with the kind of chair you're looking for. I do remember seeing that @Grigor has a chair that reclines nearly flat from...
I've only just gotten through the intro of this episode but when he jokingly introduced Oonagh as an "anti-recovery activist" I lol. I've watched...
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