Am thinking of changing my vote from "change" to "keep" after reading the comments. I found the name confusing when I first saw it but to be...
I experience more hunger than usual during PEM also. I don't crave sugar as I am intolerant to anything with added sugar and unfortunately most...
Thanks ME/CFS Skeptic Most interesting! I have tried to figure out how much of my being I'm bedbound is because of ME or POTS or what...
My daughter's debut novel launched in April and totally coincidentally;) the main character's mother has ME. Rabbit Rabbit Rabbit by Nadine...
I have what my ME physician and I think is paresthesia. It started about 2 years ago, several decades after my journey with ME began. My main...
I had a dramatic improvement on starting Mestinon. Was able to do small things like using an eraser or reaching for an object that would have...
Interesting thought. The incident I'm thinking of was definitely a delayed PEM response happening the next day. It was actually patting my back,...
Q&A is also interesting. Someone asked how to get more people to read articles like this. Ed's reply was that there's no magic answer but people...
Yes, most definitely! And increasingly severe PEM with increasing disease severity to the extent that simply patting on my arm now that I am...
It seems odd that there is a shortage of volunteers as the Massachusetts ME/CFS Association is a large active group.
Yes, I believe it is. I will send an email I have used in a message.
Wikipedia thinks so too. "Between 1985 and 1988, Karikó served as a postdoctoral fellow at Temple University in Philadelphia. Karikó participated...
I considered taking fludrocortisone but in the end didn't due to the possibility of worsening osteoporosis.
I'll answer that myself. Jarred Younger says in his youtube above that it will be recorded & available later.
Anyone know if this will be available to watch after the event?
Yes! I think that studying families with clusters of ME/CFS is an area that could potentially provide some good results. In my family of origin 3...
I took that stuff for a while in the late 1980's prescribed by my naturopath. Unfortunately or perhaps fortunately my gut was in so bad shape at...
"Ever heard of genetics?" I would respond. I have three children who have had ME.
Thanks Trish. Will do.
Am very interested in a report from this 20 minute presentation by Luis Nacul on Friday. Unfortunately I won't be able to catch it as it's at 1 AM...
Separate names with a comma.
