Sasha has replied succinctly, here’s my waffle ME wasn’t treated as biologically physical or biologically driven psychiatric in the way you...
The neurologist I saw said my brain might be affected but that didn’t make him classify it as neurological (he wanted psychiatrists to take it on...
I agree I get the same benefit from zopiclone ambien and benzos, though sadly I haven’t had the option to try clonazapam, GABA drugs, . Ativan...
We never get beyond just saying what’s wrong and should be there to how we can actually get there . Regarding no inpatient places, what can be...
It’s quite unusual for a local support group to have several, top medical advisors? Why are they required?
Hi Has anyone had homocysteine levels tested & subsequently treated and found any benefit? I was looking at this test for ease of use in the U.K....
I’ve just brought the cooling towels mentioned above, in bamboo as it’s eco friendlier. Does anyone have rave reviews for the expensive dyson...
I do have very severe ME and a surprising number of us do engage in some way, on Twitter, forums, blogs, even though we might do little else....
Military health, veterans too. He’s also currently doing a big mental health review for the government. I can’t think of any great achievement,...
I get shades of PEM, if you’re at I want to die levels I’d call it a crash. Milder PEM for me might be immune activation, insomnia, lasting a day...
I actually don’t know if I agree. I think it’s BECAUSE we aren’t making proper progress on the issues, that patients become concerned with trying...
I think there’s a truth in that but regarding CFS terminology I think it’s actually preventing proper respect and recognition necessary to solve...
Totally agree Trish. Of course very useful for Crawley et al and really just a weakening to more like oxford criteria in uk to perpetuate the bps...
I know some people find the term PEM belittling to the severe distress most of us actually suffer with an exacerbation. But words are tricky. The...
A crash for me is a really bad flare of ME where I really go down hard as opposed to more mild PEM where I can feel worse, flukey, do less for a...
It hasn’t progressed as I would like. The DoH seems to think SHs strategic priorities are the way, that’s it. The strategic priorities have...
Of Forward ME members, MERUK left CMRC and the 25% I don’t think would join, so idk if CoM is representing all of them.
https://www.actionforme.org.uk/uploads/images/2018/07/DRAFT_Minutes_CMRC_10.7.18.pdf I’ve not seen these or this news anywhere before so posting...
I don’t see why a slightly more complex criteria is unacceptable, perhaps it’s part of the issue of expecting primary care to diagnose. MS & lupus...
He’s also an Alzheimer’s champion and prostate cancer “victim “so probably has enough health “causes”
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