”We’re running clinical trials in the US, recruiting 1,000 ME and long COVID patients to clinically validate these new diagnostic & therapeutic...
Such amazing, absolutely amazing news! He’s been to hell and back for so many years. (Upon seeing this, my first thought was ”Maeve”. )
This is exactly my understanding… They forgot ME/CFS.
This article could have been about me. So many details are exactly the same. It’s scary…
If Buhrman had an ounce of integrity she’d donate her research money to Jonas Bergquist. Or to the Swedish Post Covid Association who are doing...
Imagine the honor, the privilege and the immense good fortune to work at Uppsala University, and use that to literally shit all over the suffering...
I fall asleep very late and I am wired but tired, even more than usual.
I was mild for many years before becoming severe. To me, both mild and severe feel like the same disease. The profound sickness, the intolerance...
Great to hear that!
This is devastating news.
This contradiction is actually written down in the Health care guide to ME/CFS in Sweden which says: patients need to be explained in a...
My family exerts pressure indirectly, due to the fact that they have ”healthy people” type schedules. They try to be considerate of my needs, but...
My sleep pattern has become weird after a big crash last summer that drastically reduced my baseline. I am severe and bedbound. I fall asleep late...
Moved posts Someone asked him about this on Twitter and he replied that it wasn’t weight, but water retention. I really hope he is allright and...
I had major surgery when severe. Nobody knew anything about ME/CFS at the hospital. The anestheologist was kind enough to read up on ME/CFS. He...
I find this deeply disturbing. There was a case in Sweden last year where a woman with ME/CFS took her own life, because she kept being denied...
This gives me hope and strength which is desperatedly needed when you are bedbound, living in the dark, for years. I wish the partners the very...
[ATTACH]
I often wonder if I would have avoided becoming severe, had I paced and rested aggressively during the first few years. Instead, I did the...
This is exactly my experience with pacing. Pacing does NOT improve my ME/CFS. It just helps me avoid crashes. Crashes lower my baseline, so it’s...
Separate names with a comma.
