I'm concerned that the harms done by psychosomatic misdiagnosis in ME have so far failed to take into account the devastation this causes within...
I understand they have a key role in making sure doctors are safe to practice - this is what they are absolutely failing to do with regard to ME...
My thoughts, for what they are worth, are that: 1. The change in approach to ME/CFS patients has to be compulsory or the whole exercise will go...
He says preload failure is ubiquitous in this pt population. His word. If that’s so, hasn’t he solved the age old mystery of no biomarker for...
i reported the comment as offensive, explaining why as a person with M.E.
I dont understand why the presence of any other condition would negate a diagnosis of ME given that PEM (so ewhat arguably?) is only found in ME....
You may well be right, if I find out any more I will post an update. I wrote to Panorama to ask if this is true, but have had no reply. I haven't...
Indeed, he sounds completely confused.
We need improved access to university-level courses in order to be able to study - the current requirement to study minimum half-f/t hours per...
David comments about. They had that data, right. So they said oh, look pacing , people who did pacing, they felt better, people who stuck with...
Debunked by David Tuller recently, I think the figure has now been retracted
The pacing for ME really does need differentiating, as it is a safety issue, pacing to prevent PEM to reduce risk of deterioration and possibly...
Moved post A simple biomedical test that could identify ME/CFS might help those Very Severe who are trapped in terrible situations in the UK...
I'm not going to land my source in it without checking with them first. Currently they are not well, so will catch up at some point. I was only...
So what are the possible work arounds? It must be possible somehow. (Envisages a lab in an adapted ice cream van playing the panorama theme tune...
At least 'maverick' doctor Sarah Myhill was trying to get something done, and her instinct on mitochondrial involvement was bang on. I'm a...
I think people will be making their own minds up about the fibronectin tests, and what matters right now isn't whether or not people do have the...
Unfortunately I have no more information, just heard via a friend. Must have been a good programme though!
I've already written to them several times, and then found out apparently a very good Panorama programme was made in the last two years, but the...
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