In 2011 I had a bad bout of swine flu, which resulted in sudden loss of hearing and persistent post viral symptoms including fatigue, cognitive...
We do need theories to be postulated, if only so they can be tested and lessons learned including that any particular theory is way wide of the...
A good depiction of the Elephant in the room. No amount of services/care plans will make things better if the Elephant is not first removed. We...
@Simon M makes a relevant point that the pre-print paper makes a comment about its relevance to diagnosis and treatment by making the statement...
But being sent away from the GP’s and clinics with an unsubstantiated and unexplained diagnosis of Psychological ME/CFS because as they have...
Depression can be identified as a physical/biological response to ‘terrible life circumstances’, made better, not by CBT or other psychological...
I am not arguing about the contribution of the importance of Sean’s professional good standing and influence as a journalist, but for me the star...
Some of the best advice I ever received was from my first line manager after having just started working life. A project I had been placed on was...
Oh my goodness. Where do you start with this and what is it trying to do, for whom and what purpose. It looks to me like it has been inspired to...
The biggest issue and for me the hardest to overcome is the loss of trust, not just in the medical profession and health service, but also in all...
It has long been recognised by some Doctors experienced with treating ME patients that ME patients do not cope well with ‘Standard Medical Care’....
I think it more likely that the medical and science evidence/opinion given at the Inquest, clearly shows that there was and is no medical...
See post below: The Coroner specifically said that ME was physical not psychological which will be recorded in evidence I believe.
First a disclaimer. I have no legal training, but can read and sometimes but not always correctly interpret some of the meaning in what I read....
Important and relevant points from Kitty, I think. The Coroner’s response to the ‘complete clusterfuck’ may not be as full or clear cut as we...
M, as my late wife did, asked for clear medical care systems and safety nets to be put in place before they could consent to further medical...
The published letters to the Editor are good in so far as they address some of the missing information that should have been included by Dr Miller...
Jonathan makes a very good and important observation here which has implications for the patient as well as HCP’s. On a personal level I have...
Exactly this. Once you accept the reality of the intolerance symptoms and you don’t know the cause, then mitigation of the symptoms is the most...
An excellent letter as is @V.R.T. and an effective one. However (only if you have the energy) I wonder if you might think it appropriate to...
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