Thank you to everyone for your thoughtful comments, and especially @Jonathan Edwards for explaining what you meant. Your response makes much more...
This comment makes no sense to me. #MEAction does not conduct or fund research. My understanding is that this proposal concerned how #MEAction...
I saw a post recently in an ME Facebook group (can't remember which) with a lot of recommendations for layering clothing and footwear to keep warm...
Absolutely! There's no time limit. The videos that have been shared are so powerful--it would be awesome to keep having more come out over the...
Sorry, just seeing your tag, @debored13 . Your plan sounds awesome! Not too aggressive. Just make sure to be super careful so you don't get hurt.
Correction: You can continue to sign up using the registration form link in the previous post! Even though the meeting already happened, if you'd...
Gah, forgot to post this earlier, sorry! Call starts in 1 hour! If you haven't heard, #MEAction is having a "closed-door" community call at 3p ET...
Really glad to see this discussion going. I think it's a super important topic and have been meaning to weigh in for a while, but have so much to...
Re: sharing: YouTube has a Share button that lets you send the video by email or messaging (eg WhatsApp) and post it directly to Facebook or...
I think it's awesome! They did a great job. It's perfect for sharing with folks outside the ME community, to build broad understanding and support...
Wanted to add that you can share the #NotEnough4ME NIH petition with just 2 clicks if you have a Twitter or Facebook account! Near the bottom of...
#MEAction recently released it's formal response to the NANDSC WG Report. It's an extremely thorough and detailed critique of the plan's utter...
Bumping this as the number of signatures has stalled out in the low 3,000s. Make sure to sign ASAP if you haven't yet! The #NotEnough4ME campaign...
I think legal action could be a very valuable component of ME activism in general and of the current #MEAction #NotEnough4ME campaign...
I think that is indeed what Prusty was suggesting-- that a very small number of cells was infected (not enough to create a significant difference...
I decided to just go ahead and email SMCI / Sadie Whitaker about this, since she fits both categories and has lots of experience in the...
This mission sounds tailor-made for ME/CFS research into a biomarker! Someone with scientific credibility and/or advocacy group backing should...
Bump--this is happening today! Per @Denise 's post, many advocates, activists, researchers, etc may not be able to join this call, so please call...
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