Some years ago I did a crowdfunding campaign for OMF for their ME/CFS severly ill big data study. I think Sasha helped me with the text that time....
How I said before we already did some crowdfunding campaigns and there are many ME/CFS patients who have money and they can donate. Many patients...
if so many people here think that Chris Ponting is a good candidate who could significantly move ME/CFS field why not to do a crowdfunding...
I think the diseases which you mentioned are mostly not chronic. Do you think that it´s also possible in chronic diseases or how you call it...
you are right, I mix it because in my language it´s different :-)
Is it possible that the same cause can lead to different diseases and it depends on for example which system the cause hits in our body but also...
If I understand correctly the saliva samples donated to DecodeME will be used for SequenceME study. How much time does it take sequencing of...
I dont know if this will be usefull but from my 25 years observation (I have mild ME/CFS and I am ex profesional sportman): 1. the muscle weakness...
For me the biggest question regarding to our muscles is - we have strength but very bad stamina. I think this question has never been answered. I...
Now when I read this thread I would say that it´s another kind of malaise, it´s different to feel poisoned but it´s also different to an ordinary...
I also used the term feeling poisoned the next day after drinking a bit more alcohol but I am not sure if it´s accurate. In my case it´s...
I put "worsened "hangover" effect the next day. Somehow poisoning but it´s difficult to describe it. I can drink glass of wine or a small beer....
At least in my case it doesnt fit together. The first 8 years I had a mild case of ME/CFS. I couldnt do sport anymore but I tried to walk a lot to...
Here I also would ask the question. Are the patients who are deconditioned able to do 2 - 3 times more activities from one day to another day? I...
I dont get this "lowered effort preference". I have ME/CFS since 2000. First 8 years I had full time job, I did sport (always felt terrible...
In my case it was the same. When I got sich I was professional football player. After getting pneumonie (possibly mononucleosis) I have never...
Do we know if there are ME organisations preparing a project for this opportunity?
Will he try to check her work or the methods being used? Did he say what he thinks about?
In my case I have always muscle weakness and lactate accumulation. If I push myself I still have muscle weakness, then very big lactate...
I really like these crowdfunding campaigns. I think we could use it more to get some money to our researchers and advocates.
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