@Dechi They are cardiologists who specialize in heart rhythm issues (vs. other types of cardiac issues). So (for example) if you were having...
I hope to talk to her later today and will tell her that all you guys from both boards send your best wishes. @erin, did you want me to ask her...
I just posted an update in @LucyLouWho (Misfit Toy's) thread on the other board but also wanted to reply here since you tagged me @AndyPandy to...
Thanks @AndyPandy for tagging me but I take Armour Thyroid which doesn’t seem to be part of the recall.
@Rossy191276 I have been wanting to reply to your thread re: benzos (either here or on PR and found it here first) and share my experience when I...
Thank you for the update @Rossy191276 and I am happy to talk further in the future via PM (on the other board) or by e-mail if it would be...
@Dial It In I haven't seen any of the conference but did Professor Maureen Hanson speak about Rituximab specifically (or about an autoimmune...
They are another name for the paraneoplastic autoantibodies (like the anti calcium channel one that I have). I would love to hear what Dr....
It will be in the future. IVIG is widely being used for POTS and MCAS but is just not published yet. It will be.
Rossy, I somehow missed your post back in April and the abnormality on my EMG (in 2016) was mono-neuropathy to the left phrenic nerve which showed...
There is now a commercial test for this autoantibody through Cell Trend in Germany. To my knowledge you cannot test for this autoantibody in the...
I think you meant "autoantibodies" (autoimmunity) and if so, then yes, I have experience with POTS, many different autoantibodies, high dose IVIG,...
I don't think you should feel bad at all b/c you posted the video in good faith with no bad intentions! I have posted a few times thinking...
I guess it depends how much knowledge the person already has re: the topic. I had never heard of the term "ME" prior to joining PR in 2014 (b/c...
I have to respectfully disagree and I probably Google at least 10-15 things per day as they come up on line (or in real life) so I can understand...
@Dechi, I totally missed this thread until last night and wanted to add my congratulations on your new house! That is so exciting! Let us know...
This would be my #1 concern as well although I cannot remember if you have any history of allergic reactions @Dechi? My mast cell doctor told me...
@Dechi, I have never had an angiogram but I was curious why your doctor ordered one for you? Was it Dr. Hyde or another doctor? Are you having...
Hi Rossy, I am glad that you got your tests back but sorry that they have added to the confusion (which I really relate to)! :banghead: I would...
Thank you for keeping us updated @TrixieStix and I was curious if you were having other improvements (separate from the fatigue not changing?) or...
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