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  1. Arisoned
    Post

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Thank you for asking this question. Interestingly after years of not drinking and exclusion diets, then resuming drinking again in the noughties...
    Post by: Arisoned, Oct 30, 2024 in forum: Hypersensitivity and Intolerance Reactions
  2. Arisoned
    Post

    : TV casting call for people living with ME/CFS

    I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance” in may,...
    Post by: Arisoned, Jun 12, 2024 in forum: General ME/CFS news
  3. Arisoned
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    I just want to add Fiona claims that Curable (PRT) is different to any brain retraining, lightning process or CBT which she did in the past they...
    Post by: Arisoned, Mar 19, 2024 in forum: General ME/CFS news
  4. Arisoned
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Exactly. Pointless remaining in an echo chamber.
    Post by: Arisoned, Mar 17, 2024 in forum: General ME/CFS news
  5. Arisoned
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    It’s how George Monbiot has written the articles he has about ME. Without twitter he would never have known about the suffering neglect and bad...
    Post by: Arisoned, Mar 17, 2024 in forum: General ME/CFS news
  6. Arisoned
    Post

    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME (part of the UK Government ME/CFS Delivery Plan)

    I don’t think Invest In MER agree either, hence working towards The Centre of Excellence and being the founder member of the EMEA. Years of energy...
    Post by: Arisoned, Jul 20, 2023 in forum: News from organisations
  7. Arisoned
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    You’d think…
    Post by: Arisoned, Mar 26, 2023 in forum: UK clinics and doctors
  8. Arisoned
    Post

    Long Covid in the media and social media 2023

    That’s a joke [MEDIA]
    Post by: Arisoned, Mar 13, 2023 in forum: Long Covid news
  9. Arisoned
    Post

    O'Dowd-Crawley early intervention study

    Quite scary this was only two years ago.
    Post by: Arisoned, Feb 6, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Arisoned
    Post

    Antihistamines

    There was an issue with ranitidine - “The recall includes all prescription and over-the-counter ranitidine drugs as ongoing investigations...
    Post by: Arisoned, Jan 16, 2023 in forum: Drug and supplement treatments
  11. Arisoned
    Post

    Antihistamines

    https://www.biovea.com/uk/product/detail/1982/acid-controller-maximum-strength-125-tablets These are inexpensive. Not sure what country you are...
    Post by: Arisoned, Jan 16, 2023 in forum: Drug and supplement treatments
  12. Arisoned
    Post

    Antihistamines

    I used to buy famotidine very cheaply here before I had it prescribed by my GP -...
    Post by: Arisoned, Jan 16, 2023 in forum: Drug and supplement treatments
  13. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    LDN included as a recommendation for the treatment of pain, fatigue and neuro symptoms in the review below - Link to the thread: Long COVID:...
    Post by: Arisoned, Jan 14, 2023 in forum: Drug and supplement treatments
  14. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    https://www.facebook.com/LDNNow
    Post by: Arisoned, Jan 13, 2023 in forum: Drug and supplement treatments
  15. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    http://ldnnow.com/48501/90412.html References: at the link http://ldnnow.com/48501/90512.html
    Post by: Arisoned, Jan 13, 2023 in forum: Drug and supplement treatments
  16. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    I don’t think that low ESR’s are necessarily the case. Cort’s report in HR in 2019 on “clumpers and sliders” discus Ron Davis and Dr Bella...
    Post by: Arisoned, Jan 13, 2023 in forum: Drug and supplement treatments
  17. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    I use these - http://www.ldnnow.com/ - Jayne Crocker is from the UK and is contactable. I would think she would be very helpful....
    Post by: Arisoned, Jan 13, 2023 in forum: Drug and supplement treatments
  18. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    Here are the links to Prof Theoharides studies. https://me-pedia.org/wiki/Theoharis_Theoharides Prof Theoharides spoke at The IIMEC13 Anne...
    Post by: Arisoned, Jan 13, 2023 in forum: Drug and supplement treatments
  19. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    Yes, they say in the paper they didn’t measure ESR after treatment which is a huge error, so I guess which is why the follow up paper.
    Post by: Arisoned, Jan 13, 2023 in forum: Drug and supplement treatments
  20. Arisoned
    Post

    Experience with LDN? low dose naltrexone

    I am aware this wasn’t about LDN. My ESR rate has significantly declined. This is true of others. The use of low-dose naltrexone (LDN) as a...
    Post by: Arisoned, Jan 12, 2023 in forum: Drug and supplement treatments
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