Was there any mention at the meeting of a new annual report?
That's the problem - people can comment on social media in seconds, so hundreds and thousands do it. So the result is an infinite fire-hose of...
I'm not sure I even see a lot of value of a charity endlessly discussing stuff on social media. It's not where I want them putting their effort,...
I can easily imagine a severely ill PwME being made permanently worse by the exhaustion involved in travelling, even on a trolley (I think we've...
Just saw an interview with Karen's mum, the Chair of BACME, and Chris Ponting on Sky News about this. The interviewer was very good but obviously...
Do you think you're getting closer to something that might be measurable in the blood when these episodes are happening?
What is Invest in ME Research doing these days? Are they still active? Can anyone link me to their annual report? [Edit] Found the annual report.
Can anyone give me a link to the MEA's latest annual report, chairman's report, or whatever they call it, please? Will a new one come out at...
I hadn't thought so. I first heard about it decades ago, when I think the ME charities were pointing out that head injury was one of the ways that...
We've heard for years about cases of ME/CFS after head injuries, though (but bearing in mind what you said about coincidence). I wonder if there...
We have shedloads of people catching Covid, which we know can trigger an ME-style Long Covid. Does this give us a chance to catch the biology in...
Interesting. I've always thought of my ME as post-viral but I started feeling a bit rubbish for a couple of months, though still able to live life...
Thank you! That's very good, and it's amazing to me that people are still making these claims in public for the efficacy of rehabilitation at this...
Thanks! I hadn't realised it wasn't a review. I just hate to see that kind of baseless stuff left to stand.
They're very good. But I don't see a response to Marku Partinen's review, which contains, for example, this statement: "However, people woth...
For punters as ignorant as I am, from the National Cancer Institute: "(a-feh-REE-sis) A process in which a machine removes blood stem cells or...
Here's #ThereForME's Twitter account, showing the advent calendar posts. Great to see all these messages of support (I was pleased to see one from...
I'm glad someone is asking this question!
And yet we see @Jonathan Edwards putting up his paper on Queios for comment and Chris Ponting putting DecodeME preprints up. Are we seeing...
That's amazing - well done!
Separate names with a comma.
