Yes, but what does this mean exactly? The authors presumably want to express that the treatment works in the real world too. However the clinical...
I don't mind if it said that patients are biased, if there is also a recognition that doctors and the medical system and research and politics are...
My mother developed it after a biphasic infection which she appeared to have caught from her friend who was very unwell and in bed. I was also...
This is a well written and informative paper. I have many of the listed risk factors for suicide. What is preventing suicide is the support of my...
I've had the impression for a while that the covert purpose of some psychological and psychiatric treatments is not to help the patient but to...
What are the odds that she came up with this idea all by herself? I think they are low. Someone told her these things and she believes them.
Andy is doing a great job promoting this, and I hope also showing to researchers that collaboration with patients is possible. A model for future...
I don't know. I don't have access to my genetic data :(.
Also what is wrong with these people for considering a key question whether diagnosing ME/CFS causes harm?
Under limitations they do not even acknowledge the problem with CBT and GET trials consistently failing to control for reporting bias.
My understanding is this: C > T describes a substituation at the DNA level (cytosine replaced by thymine). R248W describes a substitution of the...
What does minimum alternate allele frequency (expressed as fraction) mean? Does a value of 0.418 mean that 418 out of 1000 people have the...
I wonder if a pathway like sestrin is malfunctioning in ME/CFS.
Interesting reasoning. Consultation-liason psychiatry doesn't seem to work. Since we cannot definitely exclude that it might work, we need a new...
We should research the claim that repeated medical investigation is the cause of somatization or somehow causes illness by suggesting to patients...
"not being able to" is not the problem, at least for me. It's the symptom exacerbation that occurs and it isn't improved with training. If we...
I know what study you mean. I cannot remember the details but remember thinking (I hope I'm not remembering wrong) the study came to this...
And why is this a problem? It's perfectly possible that for example hEDS is often just ME/CFS that was diagnosed differently because the patient...
What would be the danger?
I think we can assume that people are going to be biased towards reporting the symptoms consistent with the diagnostic labels they were given....
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