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  1. Trish
    Post

    Stroop task and practice effects demonstrate cognitive dysfunction in Long COVID and ME/CFS, 2024, Baraniuk et al

    I guess people who are colour blind wouln't be given this test.
    Post by: Trish, Sep 4, 2024 in forum: ME/CFS research
  2. Trish
    Post

    Open letter to Action for ME with concerns about their promotion of a problematic Care and Support Plan Template

    Currently crashed so not able to say much. Very pleased by this response.
    Post by: Trish, Sep 3, 2024 in forum: Open Letters and Replies
  3. Trish
    Post

    What stops you getting involved in Patient and Public Participation in research?

    One of the biggest barriers, I think, is time. Asking pwME to contribute meaningfully to discussion and decision making in rapid real time...
    Post by: Trish, Sep 3, 2024 in forum: Other research methodology topics
  4. Trish
    Post

    Open letter to Action for ME with concerns about their promotion of a problematic Care and Support Plan Template

    Thanks for posting the reply, @Andy. Yes I received the reply by email today. And many thanks to AfME and Sonya Chowdhury for taking concerns...
    Post by: Trish, Sep 3, 2024 in forum: Open Letters and Replies
  5. Trish
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I'm sorry you and your family suffered that treatment, Arnie Pye. According to this article the Liverpool Care Pathway was abolished in 2013,...
    Post by: Trish, Aug 30, 2024 in forum: General ME/CFS news
  6. Trish
    Post

    UK: British Psychological Society survey on their planned new guidance on ME/CFS, deadline 9th October 2024

    I have looked at the first couple of pages of the survey. It's 8 pages with several questions on the pages I looked at. There are open ended...
    Post by: Trish, Aug 30, 2024 in forum: General ME/CFS news
  7. Trish
    Post

    UK: British Psychological Society survey on their planned new guidance on ME/CFS, deadline 9th October 2024

    @Joan Crawford, I have quoted your post from another thread.
    Post by: Trish, Aug 30, 2024 in forum: General ME/CFS news
  8. Trish
    Post

    Toward the emancipation of “medically unexplained” and energy-limiting conditions..., 2024, Hunt

    Thread here: UK: British Psychological Society survey on their planned new guidance on ME/CFS
    Post by: Trish, Aug 30, 2024 in forum: 'Conditions related to ME/CFS' news and research
  9. Trish
    Post

    Toward the emancipation of “medically unexplained” and energy-limiting conditions..., 2024, Hunt

    I'll start a new thread on this. I'm sure UK members will want to be alerted to it.
    Post by: Trish, Aug 30, 2024 in forum: 'Conditions related to ME/CFS' news and research
  10. Trish
    Post

    Who is Simon Wessely?

    Thanks Adam.
    Post by: Trish, Aug 30, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. Trish
    Post

    Two-Year Longitudinal Study Reveals That Long COVID Symptoms Peak and Quality of Life Nadirs at 6–12 Months Postinfection, 2024, Demko et al

    Don't think I've seen nadir used as a verb before.
    Post by: Trish, Aug 30, 2024 in forum: Long Covid research
  12. Trish
    Post

    Who is Simon Wessely?

    What was the newsnight piece?
    Post by: Trish, Aug 30, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Trish
    Post

    USA: The RECOVER Initiative - Long Covid research

    Last day for registration today.
    Post by: Trish, Aug 30, 2024 in forum: Long Covid news
  14. Trish
    Post

    The Born Free Protocol

    @Matth, can you tell us more about what your interest is in this protocol? Are you trying it yourself, or interested in discussing some aspect of...
    Post by: Trish, Aug 29, 2024 in forum: Other treatments
  15. Trish
    Post

    UK secures £400 million investment to boost clinical trials, includes 18 new clinical trial hubs, 2024

    Given that it seems to be being funded by the drugs industry I think it's highly unlikely ME/CFS will be included. There's no drug for them to...
    Post by: Trish, Aug 29, 2024 in forum: Other health news and research
  16. Trish
    Post

    Open letter to Action for ME with concerns about their promotion of a problematic Care and Support Plan Template

    Some posts have been moved to: Care and Support Plan template free to download, Action for ME
    Post by: Trish, Aug 29, 2024 in forum: Open Letters and Replies
  17. Trish
    Post

    Poll: In your opinion has “Long Covid” journalism improved over time?

    I think the answer is 'it depends'. Maybe there are fewer articles than in the early days overtly claiming Long Covid is psychosomatic, but from...
    Post by: Trish, Aug 28, 2024 in forum: General ME/CFS news
  18. Trish
    Post

    Preprint Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    The data is from the UK Biobank, not the UK ME/CFS biobank. I hope the samples from the UK ME/CFS biobank will be tested to see if the finding it...
    Post by: Trish, Aug 28, 2024 in forum: ME/CFS research
  19. Trish
    Post

    Preprint Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    I'm allowing myself to be a little bit excited by this. I hope Ponting's team and others will work on replication, and also see if there's any...
    Post by: Trish, Aug 28, 2024 in forum: ME/CFS research
  20. Trish
    Post

    Guardian article on origins of CBT : I have OCD. Some cognitive behavioral therapy techniques were totally wrong for me, April 2024

    Thank you for sharing your experience, @JellyBabyKid. I wonder whether it would be better for clinical psychologists to learn a whole range of...
    Post by: Trish, Aug 28, 2024 in forum: Other psychosomatic news and research
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