This article explains how cuts are particularly harmful to people with disabilities. https://therevolvingdoorproject.org/doge-ssa-cuts/
Re: a post I posted before, sorry, I don't recall exactly how I put it, and it's gone now, but it was regarding endangerment of our disability...
This just in: National Cancer Institute Employees Can’t Publish Information on These Topics Without Special Approval The list of topics includes...
... Only time will tell if my daughter's disability payment or my pay for being her caregiver will be paid as normal, delayed, reduced, or lost...
So ridiculous. It's like their removal of photos of the Enola Gay because it contained the word "gay." This is not even being done by thinking...
It was hard enough for people with ME to get disability benefits before the firings began. Now? "However, processing new claims — whether it be...
Came here to share the list of forbidden words, and I see we've already been discussing it. Yep, "accessibility" is at the top of the list. The...
Thank you. I remember when friends in the UK were going through upheavals with the NHS and ATOS and huge worries loomed. It's good to know our...
Oh that is a good resource too! Spoonwise, I have only a tiny tarnished teaspoon for reading large blocks of text, but I skimmed and saw that...
This was shared on bluesky yesterday by an epidemiologist: a group of volunteers have created an archival site of CDC information, here:...
Thanks so much for the info and alternative resource! I did glimpse a mention of PubMed being down but by the time I saw it, it seemed to be back...
My daughter and I, both with severe ME, may lose health care, all our income, and housing due to threats to disability benefits, retirement funds...
One impact of the 2024* change in US government on ME/cfs and Long COVID is that resources on medicine and science are disappearing. Workarounds...
Okay, this thread was moved here and hasn't received any notice so I do hope folks will contribute anything they can, as our online government...
This thread is intended to provide resources to preserve and share research and science information that might be suppressed. What is Happening...
Thank you for sharing this. I'm glad to see that another court order against the barrage of anti-science executive orders. So far, reports are...
What's the best, easiest strategy for keeping info on ME/cfs available? Keeping in mind that we are people with limited energy, bodies full of...
I came to post about how to respond as a community to the disappearing info problem. I think this is something that needs its own thread: a...
Information on ME and Long COVID may disappear from US government websites. Friday, the Association of Healthcare Journalists alerted its...
Yeah, I knew while I was typing the word, and meaning to use it in a broad sense, that someone was going to call me on "infection." Infestation?...
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