Fundamentally E readers feel a lot more like just reading paper. There is no screen glow the light they have is what is available in the ambient...
There clearly is and they meet many or all of the ME/CFS definitions and have many of the optionals as well but in a slightly different ratio when...
One of the important points that Chris Pointings "404k estimated ME/CFS patients" points out is that only about 100k patients have a diagnosis....
I am all for this, I like a lot of the aggressive language being used as well to not mix words on how poor the UK state has been on ME/CFS and...
Some of the ME Research UK quotes are damning...
What is happening in Karen's case is hard to explain with normal NHS available procedures, capabilities within a hospital and home care. The...
I have only been checking this since Covid rampaged through my body and made me worse but measurements of liver function vary quite a bit....
This sort of thing always concerns me a little bit, its denying a reality of the disease and none of the widespread criteria says it must be an...
I can't help but think the healthcare systems across the entire west (the world?) have been so broken by "its just a cold *cough* Covid *cough*"...
Its negative against the lightning process but its more "this doesn't make sense based on what we know about Long Covid" and not "this is outright...
Its important also to consider the patients who won't have been doing rehab. All the PEM sufferers and those far too ill be attending rehab...
Selecting for mild patients seems to be the usual study bias, that and selecting patients that a doctor thinks has ME/CFS which selects based on...
I am surprised people averaged increasing their activity. If I did this I would instantly drop to almost no activity due to PEM where I defended...
I was really searching for the right words. Its Orwellian using recovery to mean it will go away in the future for something that will actually be...
I am always going to be disturbed by the replacement of the words "chronic illness" by the word recovery because its not what the word recovery...
I am so fed up of the defaulting to rehab and exercise as if its some sort of common good that can not be skipped. When you don't have enough...
FUNCAP is the best of them that I know of. I do still have some issues with it however. 1. There is a crush effect at the bottom of the scale...
I notice recently the Long Covid clinics haved moved onto only increasing exercise when baseline improves, but they are still treating ME from...
Can they genuinely not find any other possible intervention other than "rehabillitation". Again they reach for exercise as a cure all despite no...
I am not saying its not happening because I don't really have any data (which suggests they don't actually care) but the clinics are being shut...
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