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  1. Saz94
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Isn't it SS-31?
    Post by: Saz94, Sep 8, 2019 in forum: General ME/CFS news
  2. Saz94
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Or indolepropionate?
    Post by: Saz94, Sep 8, 2019 in forum: General ME/CFS news
  3. Saz94
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    I thought Ron Davis had been saying (previously) that it wasn't a virus. Has he changed his mind?
    Post by: Saz94, Sep 8, 2019 in forum: General ME/CFS news
  4. Saz94
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Should that be indopropionate?
    Post by: Saz94, Sep 8, 2019 in forum: General ME/CFS news
  5. Saz94
    Post

    A study I want someone to do

    Absolutely not in my experience. All the days have blurred into one and I could not tell you whether something happened yesterday or last week.
    Post by: Saz94, Sep 7, 2019 in forum: ME/CFS research
  6. Saz94
    Post

    Poll on turmeric and curcumin

    Interestingly it made my POTS slightly better. Although ginger (also a potential vasodilator) made my Pots worse.
    Post by: Saz94, Sep 7, 2019 in forum: Drug and supplement treatments
  7. Saz94
    Post

    A study I want someone to do

    Oh, also the beneficial effect for me comes several hours after taking the curcumin.
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  8. Saz94
    Post

    A study I want someone to do

    Yes, here are a couple of reviews: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5664031/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3535097/
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  9. Saz94
    Post

    A study I want someone to do

    Ah, I must have gotten my researchers mixed up there. I take turmeric and curcumin in a capsule, so they don't taste of anything to me. It is...
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  10. Saz94
    Post

    A study I want someone to do

    On your point re microglial activation. Didn't Jarred Younger find this in ME? On your point re ibuprofen and cytokines and inflammation. That is...
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  11. Saz94
    Post

    A study I want someone to do

    What do you think would be useful measures to measure with and without cognitive PEM? Interesting suggestion re sleep deprivation... personally,...
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  12. Saz94
    Post

    A study I want someone to do

    I think for me... a small to medium cognitive or physical overexertion will only produce cognitive or physical PEM respectively, but a really...
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  13. Saz94
    Post

    A study I want someone to do

    These articles are physical exercise. I know that studies have been done on PEM from physical exertion. I want studies to be done on PEM from...
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  14. Saz94
    Thread

    Poll on turmeric and curcumin

    Just curious how people's experience compares with mine.
    Thread by: Saz94, Sep 6, 2019, 6 replies, in forum: Drug and supplement treatments
  15. Saz94
    Post

    Is ME a metabolic problem or a signalling problem?

    Some reflections from me on this topic, as I am currently experiencing some worsening as a result of PEM. It (my current worse-than-usual...
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research news
  16. Saz94
    Post

    A study I want someone to do

    As I've said before, this is the thing which most completely baffles me regarding this disease. What is it that goes on in my brain when I...
    Post by: Saz94, Sep 6, 2019 in forum: ME/CFS research
  17. Saz94
    Thread

    A study I want someone to do

    A study I want someone to do: (as far as I know, a study has not been done on this) Group of patients. First measurement at a time when they are...
    Thread by: Saz94, Sep 6, 2019, 62 replies, in forum: ME/CFS research
  18. Saz94
    Post

    Unpleasant taste

    Oh mine isn't like blood at all
    Post by: Saz94, Sep 4, 2019 in forum: General and other signs and symptoms
  19. Saz94
    Post

    Unpleasant taste

    I don't know whether mine is metallic. I don't know why people describe tastes as metallic. I don't eat metal and I don't think anyone else does...
    Post by: Saz94, Sep 4, 2019 in forum: General and other signs and symptoms
  20. Saz94
    Post

    The ME Patient Foundation

    Why didn't they look for other trustees to replace the ones who couldn't do it?
    Post by: Saz94, Sep 4, 2019 in forum: Advocacy Projects and Campaigns
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