Well done Adam, the video looks great - very professional.
Before I forget: In the context of the CCI-discussion, Jonathan Edwards said he has been getting opinions from professionals in various...
Hope this is the version you're looking for (revised 2014):...
Thanks for sharing. Would be good to have an overview of findings in psychology that are robust, cause it seems that a lot of what was in the...
At the beginning, I didn't have a CFS diagnosis either and even when I got one, it was quite uncertain if this was the correct diagnosis. So I...
Good point forgot to take that into account. Had a look at the data from the Jason study and only 7 out of 42 (16.7%) of the ME/CFS patients were...
Right but not as fast as the graph shows, I assume. I suspect the prevalence doesn't keep increasing like this for people in their 20s and 30 (or...
Thanks @Simon M for this interesting blog. A really good overview. One thing I hadn't thought about is how ME/CFS prevalence increases with age...
Sounds rather boring
Hilda Bastian has blogged about this (although she mostly seems to summarize and quote other people):...
(haven't read the study yet) but why would response time variability have anything to do with fatigue if the response time itself isn't...
Apparently the earnings of an episode of this Dutch Tv-quiz went to a mother with two daughters with ME/hEDS/POTS/CCI so they can have fusion...
Yes. People living outside the EU (which now includes citizens of the United Kingdom) cannot sign the online version but they can sign the paper...
How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) 1) Go to the EU website:...
I remember reading some of these qualitative studies (interviews with patients who had received CBT or GET). The participants were mostly patients...
The review (the first part of the thesis) of qualitative studies is actually not that bad. I suspect that if new therapists would read it, that...
You could circulate the paper version in your local ME/CFS support group or even among your friends and family, and then mail it when you have...
So this study wanted to test wether health anxiety is a signfificant factor in ME/CFS, one that perhaps should get more attention in treatment. It...
It does seem that some of these neurosurgeons are giving a dramatic prognosis to patients if they were to have no surgery. I can't really judge...
My understanding is that people from outside the EU (which includes people from the UK after Brexit) can still sign the paper version of the...
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