Laura Pace is there and she is an outstanding gastro doctor that has done many presentations for dysautonomia international.
That twitter post helped make a lot of sense. Autoimmunity of some sort has to be 'part of' the big picture. My autoimmune friends go through...
I just had an appointment with my nephrologist because back in 2018 an ER doctor saw some slightly increased protein in my urine. Local...
I just watched it, and it was very rushed. I had trouble following along but caught some of the gist of it. I still feel in the dark though. I...
What is concerning to you?
Maybe I'm missing something but what are the 'possible treatments'? Is it ivig?
https://www.healthrising.org/blog/2022/07/06/apamycin-resurgence-doctor-chronic-fatigue-syndrome/ I felt this story was kind of far fetched like...
Split from USA: NIH National Institutes of Health news Avik Roy and Gunnar Gottschalk presented their hypothesis on a NIH ME/CFS working Group...
Feels good to see some of this hard data come out. Who thought the NIH would be the ones to help CFS patients and researchers find some leads...
To add: It seems the NIH has decided to take this same study and run it in Gulf War Syndrome patients. My gut feeling is they wouldn't be doing...
I agree with some of the sentiment above. I think Nath knows the controversy surrounding CFS. He’s knows he’s very outnumbered by physicians who...
https://www.cell.com/cell-reports/pdf/S2211-1247(22)01653-9.pdf Do we need anti anxiety meds 24/7?
Exosome-associated Mitochondrial DNA is Elevated in Patients with ME/CFS and Stimulates Human Cultured Microglia to Secrete IL-1β...
I don’t really know. I ‘think’ there are many different diseases that need to be excluded before CFS is made the diagnosis. I have a gut feeling a...
I know how you feel. I think there is hope to hold out for with the NIH paper, if Prusty is a let down. I'm convinced Nath and his team have found...
The low incidence of POTS is surprising to me. I know Klimas, Rowe, Systrom, and probably others would say the prevalence is much much higher.
I get this and I personally think it is related to the high levels of norepinephrine I have from POTS. Typically when I feel my heart rate is...
I was wondering where Jonas disappeared to over the last 1-2 years, or so? There's a strong convergence of neurological-inflammation that seems...
I have something strange to add. As stated before my worst symptoms are gastro issues that keep me house/bed bound and therapies/medications just...
I sure hope Prusty and Nath can make some jaw dropping presentations soon because I am feeling raked over the coals. I hate seeing $ for...
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