Which makes it all the more concerning that the MEA are working with BACME to produce materials for use in ME/CFS clinics Yes, of course I agree...
Apologies for getting the name wrong. Thread here: UK: ME Local Network
Thank you, @Simon M for the article and @chillier and Audrey for your work. It is such important work. We need to know whether the hopes that have...
Some posts have been moved to: Covid vaccination - bad reactions, vaccine injury, and access to paxlovid.
Some posts about a different type of nasal spray have been moved to a new thread Efficacy of a Nasal Spray Containing Iota-Carrageenan in the...
Efficacy of a Nasal Spray Containing Iota-Carrageenan in the Postexposure Prophylaxis of COVID-19 in Hospital Personnel Dedicated to Patients Care...
They have not been on the forum since 2020, so you may not get a reply.
Altered X-chromosome inactivation predisposes to autoimmunity CHRISTOPHE HURET, LÉA FERRAYÉ, ANTOINE DAVID, MYRIAME MOHAMED, NICOLAS VALENTIN,...
This is where I think longitudinal studies are needed, with good quality wearable motion sensors and heart rate and hrv monitors, and apps to...
None as far as I know have broken ranks to tell us what's going on. We await Hilda's next move. If anyone on the IAG is reading this, perhaps you...
:laugh::ill::banghead:
Anyone fancy working on a letter to BACME spelling out all the problems with their materials and asking them to update them? Not me at the moment....
The video is a talk Katie Johnstone gave to the Local ME network. Edit: correction - the ME Local Network. I started trying to watch this but...
No.
Thanks for the notes, Hutan. I watched it too but rather inattentively. I was shocked to hear at the end Walitt recommending brain training even...
Our aim here is to enable open discussion of any published science without fear or favour. That way we hope to help each other to understand how...
The sample sizes, especially once they are split into male and female subsets, are so small it's hard to know what to make of these results. I...
I think a model or set of models also has to account for those of us whose problems are more with physical rather than cognitive symptoms, or...
I completely agree with you, @tuha. Throughout my ME/CFS I have repeatedly pushed myself to and through exhaustion, pain, nausea etc etc., and...
Given that several studies have found between sex biological differences in ME/CFS, I think it's possible we may need two separate models.
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