Recent Activity
Activity stream for all registered members at Science for ME.
-
RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
From the article: This is the second time that Nath has alluded to the demoralizing effect that attacks can have on researchers. (The...
Jun 3, 2024 at 2:19 PM -
RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
Health Rising (Cort Johnson) just released a piece on the study and it’s findings. While I think parts of it were well written, I was...
Jun 3, 2024 at 2:19 PM -
MeSci liked Adrian's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If I were working in this area the first thing I would do is set out what the PROM is trying to achieve and hence define the properties...
Jun 3, 2024 at 2:17 PM -
RedFox liked Trish's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Fatigue is what I felt when well after a long hike, dancing all night or being up several times a night feeding a baby or caring for a...
Jun 3, 2024 at 2:17 PM -
RedFox liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
They all had an insufficient workup during the acute and sub-acute stage of their disease/trigger event, making it close to impossible...
Jun 3, 2024 at 2:17 PM -
MeSci liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The issue no one talks of is coercion and all of the forms that come under this (social pressure , culture, all these links to schools,...
Jun 3, 2024 at 2:13 PM -
MeSci liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
In a sense maybe, but what we normally call research is investigation that reliably transfers to a general situation. And when it comes...
Jun 3, 2024 at 2:10 PM -
MeSci liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To me, there might also be an opportunity to work on something sooner rather than later, iron out as many of the creases as we can, and...
Jun 3, 2024 at 2:09 PM -
MeSci liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 3, 2024 at 2:07 PM -
MeSci liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think I would have found it very helpful when I was newly learning to cope with symptoms and crashes and still working part time. It...
Jun 3, 2024 at 2:06 PM
