Recent Activity
Activity stream for all registered members at Science for ME.
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Eleanor liked Adrian's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If I were working in this area the first thing I would do is set out what the PROM is trying to achieve and hence define the properties...
Jun 3, 2024 at 4:36 PM -
MEMarge liked MrMagoo's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Can’t wait to see the video when it’s released in a few days
Jun 3, 2024 at 4:36 PM -
MEMarge liked MrMagoo's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
It makes them look paranoid
Jun 3, 2024 at 4:36 PM -
MEMarge liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Normal good practice chairing of any meeting especially larger groups where people are remote would be to explain when questions will be...
Jun 3, 2024 at 4:36 PM -
MEMarge liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
And attribute that absolutely zero abuse to the disclaimer/warning? Seriously, of course no online seminar that invites audience...
Jun 3, 2024 at 4:36 PM -
MEMarge liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Perhaps it is meant to keep Tyson in line and stop her further abusing members of the patient community?
Jun 3, 2024 at 4:36 PM -
MEMarge liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
It is. They decided what they wanted to do, then asked some pwME for feedback. They also engaged here and chose to disregard all...
Jun 3, 2024 at 4:35 PM -
MEMarge liked Amw66's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly this. Chris Ponting' has often said that the input of pwME in Decode ME from the start proved key to how questions were framed...
Jun 3, 2024 at 4:35 PM -
Yann04 liked ME/CFS Skeptic's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I think that would be the correct way to do this experiment. I believe the authors' significance testing is a somewhat misleading as it...
Jun 3, 2024 at 4:33 PM -
Creekside replied to the thread A question about mitochondria.
poetinsf makes a good point: where's the weight gain expected from mitochondrial dysfunction? Some PWME gain weight, while others lose...
Jun 3, 2024 at 4:32 PM -
John Mac liked Kalliope's post in the thread Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Me/Cfs): The Biology of a Neglected Disease, 2023/4, Pretorius et al.
Merged thread Now published: Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating...
Jun 3, 2024 at 4:26 PM -
rainy liked Trish's post in the thread Walk for ME 2024.
Lovely to hear from you Ian. Best wishes to your mother. Well done with the fundraiser.
Jun 3, 2024 at 4:25 PM -
rainy liked NelliePledge's post in the thread Walk for ME 2024.
Good to hear from you @IanMcPhee sorry to hear your mum’s not too good hope things improve
Jun 3, 2024 at 4:25 PM -
rainy liked JohnTheJack's post in the thread Walk for ME 2024.
Good stuff, thanks, Ian. Sorry to hear your mother isn't well. Hope she improves soon.
Jun 3, 2024 at 4:25 PM -
rainy liked IanMcPhee's post in the thread Walk for ME 2024.
I'm a little late, but Walk for ME is running again this year, and so far the team target is an amazing £10,000! If you would like to...
Jun 3, 2024 at 4:25 PM
