Recent Activity
Activity stream for all registered members at Science for ME.
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MelbME liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Over there/in other countries did the medical profession (I don't know if they still do) write patient notes and medications etc in...
Jun 3, 2024 at 11:31 AM -
MelbME liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
That's interesting, but nope nothing like my PEM, which has been far more like you suddenly get eg glandular fever. In the earlier years...
Jun 3, 2024 at 11:31 AM -
MelbME liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
When it was used to describe my illness, I think it really was in that sense. I first heard it in the mid-70s, when I'd seen the GP...
Jun 3, 2024 at 11:31 AM -
MelbME liked DigitalDrifter's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
They mean different things to different people but I think diluting the criteria to allow for fatigue after exercise can be highly...
Jun 3, 2024 at 11:31 AM -
MelbME liked poetinsf's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
If you are asking if I get brain fog, yes, I still get it as a part of PEM. But the cognitive PEM has never been nearly as big a problem...
Jun 3, 2024 at 11:31 AM -
MEMarge liked Hutan's post in the thread UK: New advocacy resource for people with ME in hospital.
Certainly MS is different. But I think it's still legitimate for the ME Association, for example, to expect to have credibility when...
Jun 3, 2024 at 11:30 AM -
MEMarge liked Jonathan Edwards's post in the thread UK: New advocacy resource for people with ME in hospital.
Isn't there a n FND society, probably run by Jon Stone, though? Sharpe has the support of the Royal College of Psychiatrists and even...
Jun 3, 2024 at 11:29 AM -
MEMarge liked Andy's post in the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
The claim By Ron about patients having MS has previously been discussed here, if it helps, Dr Ron Davis - Updates on ME/CFS research -...
Jun 3, 2024 at 11:28 AM -
MEMarge liked SNT Gatchaman's post in the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
One of the talks was pre-recorded and posted a couple of weeks ago. Dr Tom Molmans: "Addressing psychic trauma in Long COVID and...
Jun 3, 2024 at 11:28 AM -
MEMarge liked Trish's post in the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
This has been raised before. I have no idea why he repeats this idea.
Jun 3, 2024 at 11:28 AM -
SNT Gatchaman liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 3, 2024 at 11:27 AM -
MEMarge liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 11:27 AM
