Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Over there/in other countries did the medical profession (I don't know if they still do) write patient notes and medications etc in...
Jun 3, 2024 at 12:16 PM -
Yann04 liked ME/CFS Skeptic's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I don't know if this thread has just slowed down or if others are working on a letter behind the scenes. I think a lot of valid points...
Jun 3, 2024 at 12:13 PM
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Trish liked Lou B Lou's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and...
Jun 3, 2024 at 12:11 PM -
Trish liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 12:11 PM -
Trish replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Some posts have been moved to: Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024
Jun 3, 2024 at 12:09 PM -
Lou B Lou replied to the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and...
Jun 3, 2024 at 12:02 PM -
MelbME liked Paraprosdokian's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I was quite excited when I saw this paper because if it is correct it would be a big step towards understanding the cause of LC (and...
Jun 3, 2024 at 11:57 AM
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Lou B Lou liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 11:56 AM -
Lou B Lou liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes what PPI was there at the initial stage of scoping out the project, the assumption appears to have been for a bunch of...
Jun 3, 2024 at 11:56 AM -
Lou B Lou liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 3, 2024 at 11:56 AM -
Trish liked ME/CFS Skeptic's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Any update on the letter regarding effort preference and EEfRT? Has a summary of the issues identified here already been sent to the NIH...
Jun 3, 2024 at 11:55 AM -
ME/CFS Skeptic liked Paraprosdokian's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I was quite excited when I saw this paper because if it is correct it would be a big step towards understanding the cause of LC (and...
Jun 3, 2024 at 11:55 AM
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Yann04 liked bobbler's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
this
Jun 3, 2024 at 11:54 AM
