Do we have a transcript of this? Turns out that could be useful for any comment on the freshly published IQWiG report on ME/CFS. (see News from...
Week beginning 8th May 2023 Part 1 of 2 News, articles and advocacy International ME Awareness Day 12th May In Washington DC Long COVID &...
Thanks. I needed that laugh. :) Yet another in the long tedious trail of failures that I had forgotten about. There are so many of them.
Of course Carson would never respond to these criticisms and instead issue unsubstantiated accusations of “harassment.” His initial comment is...
Carson’s statements are especially false and misleading because CBT has not only been conclusively demonstrated not to work for ME/CFS (PACE) but...
...- will it capture treatment harms? - if it had been used in the PACE trial, would it have been vulnerable to the same criticisms as the...
...and he filed the FOI request that busted open the horrific PACE trial, the study that falsely claimed exercise as a treatment. That fight came...
I’m sorry I haven’t read your comment in full yet (but looking forward to doing so when I have a moment where I’m better set up to make the most...
I couldn't find any because I can't remember or figure out how to search for it, but over the last few years I've seen several long haulers who...
Yes. And all these years later, we have just reviewed a recent study on CBT in Long Covid that used actometers to allocate the participants into...
As ever Trish, a masterful response. Very helpful. Thanks. B
Abstract: Post-COVID-19 syndrome is an ongoing challenge for healthcare systems as well as for society. The clinical picture of post-COVID-19...
There is evidence that in PACE the research team abandoned the end of trial actometer data collection that was in the original protocol because...
This would best be addressed by @rvallee . You’ve quoted my weak pun in reply to his post, thus tagging me rather than him.
...years. You see, there is a wider research world than just the PACE trial and ME. I realise you, and other posters may not be familiar with the...
...6MWT scores and remembering the post treatment scores in the PACE trial which were a group with similar age profile. This study's groups...
One thing that concerned me is whether they propose to gather objective data i.e. re psychological interventions? If the PACE authors had carried...
A recent reference to the PACE trial in a study protocol (*) by one of the project teams of the large SOMA.CROSS research group at the UKE...
I think most people (people outside academia, clinicians, patients) still think Cochrane is +ve. However, I would say at best it is...
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