Oh you need to highlight that subjective outcome indicators are unreliable - Google something like "measuring activity levels Actimetry versus...
While there's some problematic stuff about exercise and rehab (mainly from Todd Davenport), there's a good section on the harmful Australian...
Merged thread Commentary re newly published? trial on MUS in the Lancet. Silje Endresen Reme https://doi.org/10.1016/S0140-6736(24)01138-3...
...to understanding of ME/CFS. This is as big a scandal as the PACE trial, and potentially even more powerful in lasting influence if it isn't...
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But they were...
who wants to tell them?
...irrespective of type of exercise [51], [55]. Importantly, the PACE trial showed that GET was more effective than adaptive pacing therapy (APT,...
Just a side note on this point, while it is often described this way - as something they planned to do and then "dropped" - the trial management...
Off to read, thanks for the update
The PACE trial used wearables 20 years ago. They used step monitors for a week at the start and were supposed to use them again at the end, until...
...trial to test the treatment. We all remember what a disaster the PACE trial was. As you say, we want objective evidence.of treatment...
Good bit of priming there from Sarah Tyson.... but confusing given I thought she was the one who became abusive / name-calling as a bit of a...
Posts moved from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 Excerpts from...
Quote from Nath: From the excellent Health Rising post just published covering the NIH symposium about the intramural study.
...to not be able to get pages that are too long, such as the Pace Trial page. Which lol even has a note on the page that it needs to be shortened.
...the hospital physiotherapist was technically not GET as per the PACE Trial but it was rehab type incremental HIIT exercises as if he was...
Yes, but that's just noise from badly designed trials, the inevitable, small, subjective improvement in some patients that is going to occur using...
...much worse." I can also imagine a John Oliver rant on the PACE trial: "That's right! They actually claimed patients could be both severely...
...study is that it’s a very different situation to the PACE trial. The ME community’s advocacy against the PACE trial was extraordinary, and...
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