Defining ME/CFS
I’m guessing that Jo is referring to the decision to drop actigraphy, which the minutes suggest was because a Dutch study had found that it wasn’t...
...matched for age and gender. But then I remember that in the PACE trial, the King's centre's patients do not sound representative of the wider...
well said, as someone with a background working with the CLEAR immune dysfunction that is CAUSED by HIV (i worked in S. Africa with clinicians but...
I wasn't suggesting saying the opposite... (although if there is persistent/reactivated virus then antivirals may well be helpful to some). It...
I have just sent the following feedback by email to Sarah Tyson: Typo spotted after sending corrected here in red.
...mental side when arguing about the technical reasons why the PACE trial is rubbish. In that specific context the right argument is that the...
...but webvare giving it our best shot. The reference to the PACE trial is completely irrelevant, and misdirected. We recognise that...
...it reminds me of when Action for ME paid for participation in PACE trial so that they could “be in the room” as it was going to happen anyway....
Probably true, but not enough for me. If we get fixed they'll simply move on to the next thing. This thing will happen to people again and again...
...major BPS figures are still very active and vocal following the PACE trial, which was as big a public humiliation as most scientists will ever...
@bobbler Psychosomatics is clearly the hill that the psych world has decided to sacrifice its reputation on. Not to mention its patients....
Tagesspiegel, 2024-02-09: Long-awaited active ingredient against Long Covid: Participants wanted for study with BC 007 (Interview with CEO of...
...do not. Single case stories in this context are as useless as the PACE trial because you cannot attribute cause without adequate control...
Trial By Error: Yet Another Meta-Analysis Purporting to Prove that CBT Is Effective for “Chronic Fatigue Syndrome” I just wrote about how PACE...
Two things of particular note 1. Federovski hasn't understood PEM 2. He hasn't read the NICE guidelines properly. He says: That is not what...
...David Tuller Debate Over Recent Citation of Arguably Fraudulent PACE Trial Discusses the above controversy over recommendation of graded...
...By Error: Debate Over Recent Citation of Arguably Fraudulent PACE Trial Professor Fedorovski et al conclude their response with this: “The...
There is also an easier to listen version for ME sufferers. I've listened to the first 30 minutes, it seems like an excellent review of ME history...
... to which the review authors replied: quotes: We did not advocate generic advice to ‘do exercise’, but were calling for a more nuanced,...
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