Just quickly sharing Dr. Hwang's reply after I forwarded my correspondence to NIH on his research. "Thank you very much for your support, Mr....
Week beginning 18th September 2023 Part 1 of 2 News and advocacy JNNP Rapid Response: The ME community support NICE and reject the misguided...
@B_V if felt appropriate, that might be worth highlighting on social media as a marker of problem scale.
Paul Hwang says he's been "deluged" with emails from patients and he's trying to respond to each one with a prepared response. So I'm guessing...
Love that you included all those kisses at the end ;)
@B_V From a member on Phoenix Rising forum: “Well - I added lead researcher Paul Hwang to the email and he replied to me already! He thanked me...
I sent something with the help of ChatGPT. It's pretty good for stuff like this, just asking it to rewrite the message so that it preserves its...
Quickly leaving the template here, if others desire to send to NHLBI Director as well: Message Template: To: NHLBIinfo@nhlbi.nih.gov;...
I saw in an NIH media piece on the study that they were also looking at the ER stress inhibitor drug salubrinal and tested it on ME cells in the...
It looks like Relyviro was rejected by the EMA and is being re-examined. https://www.ema.europa.eu/en/medicines/human/summaries-opinion/albrioza...
This was the most-read article on Washington Post yesterday: [MEDIA]
That sounds promising. It's the sort of thing a pharmaceutical company might be interested in when they've got a very expensive drug but a rather...
Paul Hwang is trying to get a clinical trial of Relyvrio going. It's an ALS drug and he has some evidence it can reduce overexpressed WASF3.
My article about Amanda Twinam, the woman whose doggedness in understanding her own health problems led to Paul Hwang's work, is finally out. Also...
Hey @B_V! As August comes to a close here, was just wondering if WP is still slated to publish this soon, from what you know? Thanks for sharing...
Okay, I have answers! Yay. 1) Aspects of fibroblast cell culture that I raised appear to be handled sensibly, carefully, thoroughly and...
Paul Hwang also replied to my email which was very nice given the fact that he is out of office . He said he will follow up with any questions.
Paul Hwang sent me a couple of lovely responses, seems like a really nice guy. I didn't get the full picture because he's out of the office and my...
@chillier thanks for asking for detail and holding my statements accountable. Should actually happen more. Density (contact inhibition): I don't...
Did you check the supplemental materials for some of the info you're looking for? You could also write Paul Hwang and ask for it.
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