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  1. Sasha

    Free 'Unrest' tickets for BFI (London) showings 4/5/6/8 Nov for medical professionals & scientists

    Actually, that might not be a bad idea - they might pass it around the practice! :)
  2. Sasha

    6&7 Nov: Cochrane wants patients' views in tweetchat to make 2018 conference relevant, accessible

    In terms of access, livestreaming is the only chance a lot of us would have to access the conference.
  3. Sasha

    MEAction: Contact your MP and we'll send them a screener of UNREST

    What's a screener link? Anybody know?
  4. Sasha

    Open Medicine Foundation begin 'Science Wednesday' updates etc.

    This seems to be a new initiative: More here: https://www.omf.ngo/science-wednesday/ The first one was 29 Oct: https://www.omf.ngo/2017/10/29/introducing-omfsciencewednesday/ And the next, 1 Nov: https://www.omf.ngo/2017/11/01/personalized-medicine/ I found both of them via the...
  5. Sasha

    Sign! Unrest' US & global petitions for more ME/CFS research funding

    Good idea to contact the Unrest team! (I meant #MEAction rather than the ME Association, but either way, the Unrest team is the better choice. :))
  6. Sasha

    Sign! Unrest' US & global petitions for more ME/CFS research funding

    I wonder if that should be 'billion'? Worth contacting #MEA with these good points? (Sorry I am unable.)
  7. Sasha

    Solve's "#Cash4theCause of ME/CFS" fundraiser - vote with cash to get webinar in that area

    Unusual idea for a fundraiser! What do YOU think causes ME/CFS? We want to hear from you! The underlying cause of ME/CFS is still a mystery… one that we are working hard to solve every day. We know there are many different theories and avenues to explore, but we want to hear what our community...
  8. Sasha

    Pharma industry newsletter on ME/CFS drugs ('Pink Sheet') - Ampligen, Rituxan and KPAX-002

    He talks about it in this video (first on his list, about 1 minute in):
  9. Sasha

    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    Sorry to hear that so many are having these additional health problems! But I wonder if I can steer people back to the topic of the thread... which is, are we at higher risk and if we are, what can we do about it?
  10. Sasha

    Jane Colby Tweet Forward ME

    I've been looking over the past few days (at Jane Colby's and the MEA's Twitter feed) and haven't seen anything.
  11. Sasha

    Free 'Unrest' tickets for BFI (London) showings 4/5/6/8 Nov for medical professionals & scientists

    These appear to be special showings at the British Film Institute in London. https://www.unrest.film/medical Please spread the word to medics & scientists who might want to go! :)
  12. Sasha

    Pharma industry newsletter on ME/CFS drugs ('Pink Sheet') - Ampligen, Rituxan and KPAX-002

    This is some sort of industry newsletter, and Zaher Nahle of Solve spoke with the people who produce it...
  13. Sasha

    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    At yesterday's panel following the screening of Unrest at the London School of Hygiene and Tropical Medicine, Luis Nacul (I think) said that he thought that PWME had a raised risk of cardiovascular disease and diabetes (have I got that right, @Jonathan Edwards?) If so, is that likely to be...
  14. Sasha

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    So nothing new that I could see, but good that he's out there trying to get other researchers interested. Good that he promoted 'Unrest' too (assuming that he did, not just the Stanford tweeting people).
  15. Sasha

    Sign! Unrest' US & global petitions for more ME/CFS research funding

    It's a new one on me, which is why I posted it. And it has quite low numbers for a thing pushed out by the Unrest team, which suggests it hasn't been going long. ...just had a quick look on meaction.net and they seem to be the same ones as on there (I think they're linked because they're...
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