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  1. Barry

    BBC: 'Vindication' for woman who wanted ME on death certificate

    This is a subtlety that I had not picked up on until reading this, although once it is pointed out it's then pretty obvious (and thereon no longer a subtlety). But it's easy to miss things sometimes until someone in the know points it out. Many thanks.
  2. Barry

    Solve ME/CFS Initiative - Editorial: PEM. It's time to Retire the Term

    Many thanks. That had completely passed me by.
  3. Barry

    CBT à la PACE

    To me it feels like using the same plain 'CBT' label for so many variants is doomed to be misleading. I suppose the complexity comes when it may be argued that the fundamental treatment is the same (correcting false beliefs), but being applied to many different problems, some of which validly...
  4. Barry

    CBT à la PACE

    A licensed drug presumably/hopefully has to conform to a strict specification of what it is, and what variations from nominal are allowable for it to still be marketable and prescribable as that drug. If some company attempted to market something significantly different from that drug under the...
  5. Barry

    Solve ME/CFS Initiative - Editorial: PEM. It's time to Retire the Term

    I agree that switching terminology without significant advocacy benefits would tend to be detrimental at this time, and actually diverts attention form much more important things, like getting PEM recognised as an important diagnostic criterion. My corollary to that would be if doing the former...
  6. Barry

    United Kingdom: The Royal Society of Medicine

    The sceptic in me says that SW will find a way to oh-so-casually drop an innocently-nuanced comment or two along the way, that he can just-plausibly deny have any ulterior motive behind them. His stock in trade, and I cannot believe he would let such an opportunity pass him by, when he must be...
  7. Barry

    United Kingdom: The Royal Society of Medicine

    Indeed, your point is well made.
  8. Barry

    Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

    Presumably the people who were happy to post their full names when commenting on that article have already been followed up on? e.g:
  9. Barry

    United Kingdom: The Royal Society of Medicine

    That is a very valid observation. Why indeed? Seems like the old school ties and funny handshakes have been operating in overdrive behind the scenes. One thing's for sure: This is not just happenstance; smells strongly of social engineering.
  10. Barry

    BBC: 'Vindication' for woman who wanted ME on death certificate

    Sincere thanks @Amy101 to you and your family, and so very sorry about Merryn. I've been keeping my MP posted about ME, and highlighted this story to him the other day, having previously brought his attention to an earlier story about Merryn. I clarified that whatever strategy any government may...
  11. Barry

    United Kingdom: The Royal Society of Medicine

    I see that @jayletay commented on Stephen Fry's tweet here. I'd like to think Stephen Fry would read Jessica's book "A Girl Behind Dark Glasses". Maybe a complementary copy might be in order? It would be an appalling shame if Stephen Fry did it all wrong, in the sincere belief he was doing it...
  12. Barry

    United Kingdom: The Royal Society of Medicine

    SW's version of ME reality is steadily being exposed as propagandist rubbish, so I would really hope Stephen Fry does some homework to ensure history doesn't show him being taken in by the same glib harmful charm. It's especially tricky because SW (knowing full well the person he is talking to)...
  13. Barry

    Mirror: ME sufferer spent seven years in bed but she's now conquered the highest mountain in Britain for charity

    And of course patients can be presumed to just be pudding it all on.
  14. Barry

    Treatment of ME patients in ERs and Hospitals

    @Jonathan Edwards, I have to agree with this. So much of what PwME are up against, is medical treatments and practices alleging good scientific underpinning, but not at all. It's not about what we are merely convinced is right, but what also has good scientific evidence supporting that...
  15. Barry

    Article in today's Eastern Daily Press about the differences in care for ME patients in Norfolk and Suffolk

    Yes I did appreciate that. Maybe I misinterpreted this and similar ... ... as suggesting access to treatments was the biggest issue, rather than not having proper treatments at all.
  16. Barry

    Article in today's Eastern Daily Press about the differences in care for ME patients in Norfolk and Suffolk

    Except it talks about treatments, as if good treatments are there for the asking, if only the postcode lottery did not deny access to them. What treatments?
  17. Barry

    Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP

    Made mine aware of it anyway ... which he jolly well should already be anyway, but thought I'd make sure.
  18. Barry

    Who was it that said being in support groups leads to poor outcome?

    They do seem to have this fixation on making bold claims without properly testing their validity. Sometimes a bit of a trial ...
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