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Yes I know someone on another forum who would definitely benefit from this support as reliant entirely on paid help and no family/friends support.

Me too as he links up with the low carb gp who I follow.

Graded Ear Therapy is a crackling quip

The Tony Blair of ME :sneaky:

Good to see MEA and AFME having a united front to GPs. Hope this is the start of a more widespread education campaign.

I’m sure those pigs have an unhelpful belief and they just need a bit of Skype CBT into their pig styles and they will be fully recovered flying pigs just ask Trudy she’s probably got a training video on how to get your pig to fly

Yes made me think of this thread you posted @adambeyoncelowe which talks about people with “illusory mental health”https://www.s4me.info/threads/cfs-and-the-somatic-expression-of-emotional-distress-applying-the-concept-of-illusory-mental-health-to-address-the-controversy.5540/

It’s disappointing when people only perceive the negative effects of the establishment through public organisations in so far as it affects them, in this case as an employee, and can’t see the negative impact on those the public organisations are supposed to serve. For me a key part of being a...

Eugh even worse

What does CDC have for MS or Parkinson’s @Webdog? it seems to me a good way of arguing for further change from CDC as with NICE to get past the issue of there being no specific medication and point out there should be equivalent levels of support for management of the illness to other chronic...

Politics innit :banghead: Unfortunately a fact of life wherever money is required politics is what decides how it is allocated.

The aerobic/anaerobic thing always gets me in a muddle if anyone has any suggestions on a good clear explanation it would be much appreciated

Maybe we need a facetious emoji :D

Remember this at my grandparents. Forgot to mention that I think the term came from Army slang.

Chalder et al regurgitating Wessely what a surprise

That’s the polite version - it’s short for bum fodder ie toilet paper. In the olden days people used any old waste paper including newspaper

Let’s hope they go gung ho on the getting off the hook front then £££££££

Yep and since they have good relations with BACME probably AFME the best people to bring home to BACME the writing on the wall. Use the existing connections to influence others to change.

I would have thought such a project would be a priority for dePACEifying of materials. I would hope AFME would now insist any materials fit with their new approach and notify any partner organisations whether NHS or not that they won’t sign up to promotion of PACE based content.

Interested to hear how @Action for M.E. materials will be reviewed. I would hope there would be patient involvement rather than as in the guide to Pacing, being written by an CFS/ME clinic. CFS/ME clinics have less expertise than patients- see @Keela Too blogs on pacing for content that is...