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  1. Forbin

    Mitochondrial complex activity in permeabilised cells of chronic fatigue syndrome patients (2019) Tomas, Brown, Newton, Elson

    Reminds me of Ron Davis' belief of there being "something" in the blood serum. Some molecule for which I think he had an upper or lower boundary on its size. If it's not present in healthy serum, I wonder if such a thing might be regarded as a sort of "poison"/"toxin" - perhaps some molecule...
  2. Forbin

    Canadian Consensus Criteria not suitable: PACE trial minutes

    I wonder what they consider an "intrusive" procedure. From what I can see, diagnosis might involve an EKG and a sleep study (if you don't take the patients word that they have disrupted/reversed sleep patterns). Likewise, you could pretty much check off "irritable bowel syndrome" based on...
  3. Forbin

    what are you using for toothpaste?

    My hands are too large to use handheld floss effectively on anything but my front teeth. However, a while back I ran across this (below) (Listerine "Ultraclean" - formerly called "Reach"). The floss units are disposable. They seem resilient enough to be re-used once or twice if rinsed, but I...
  4. Forbin

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    It's also worth noting that Dr. Ramsay listed "emotional lability" (mood swings) as a feature of ME. Emotional lability is also a symptom listed in the Canadian Consensus Criteria. The International Consensus Primer says: I'm somewhat embarrassed to say that this happened to me in my early...
  5. Forbin

    USA: JAX ME/CFS Center and Derya Unutmaz news

    This is the other video from The Jackson Lab that accompanies the article above. Researcher Julia Oh, Ph.D., discusses the microbiome and their research approach.
  6. Forbin

    Personality and fatal diseases: Revisiting a scientific scandal, 2019, Pelosi

    This reminds me of a documentary on treating cancer I saw in the late 1980's. It may have been the one on interferon that I mentioned in another thread. There was a middle-aged woman in a hospital bed who had been diagnosed with cancer. In desperation, she was telling her husband that she had...
  7. Forbin

    Intimidation of PACE critics or critics of other Psychosocial research

    Oh, he's very qualified... :) [If you're wondering about "Dr." Ed's bushy white hair, I'm pretty sure it's a reference to Sam Jaffe's portrayal of "Dr. Zorba" on the "Ben Casey" TV series in the early 1960's.
  8. Forbin

    Esther Crawley

    Words to the wise... and the not so wise.
  9. Forbin

    Trial By Error: Professor Sharpe’s Retraction Requests

    Were it up to me, they'd write back and tell him that his requests are vexatious.
  10. Forbin

    Kawasaki Disease Outbreak in San Diego

    There's been a small outbreak of Kawasaki disease in San Diego. Usually a disease of young children, it causes inflammation of blood vessels throughout the body and can be fatal if not treated. Kawasaki's is considered rare. Its cause is unknown. In San Diego, sixteen children have come down...
  11. Forbin

    Star Advertiser: Is chronic fatigue syndrome real? [Dr Oz claiming that there is a test for ME/CFS]

    Below is Columbia's July 2018 write up on how the combined results of microbiome and metabolite testing identified ME/CFS patients 84% of the time. As @Andy said, it needs to be replicated, and it's not a clinical test but something that I imagine can only be found in research settings. Still...
  12. Forbin

    Trial By Error: BMJ Amends Last Week’s PACE Article

    When it comes to patients, perhaps instead of "activists" they should have used the term "engaged patients," as this 2016 World Health Organization document would seem to suggest. Patient Engagement: Technical Series on Safer Primary Care...
  13. Forbin

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    Somehow, "evidence" sounds considerably more convincing than "indications." When asking my doctor if a medical procedure is safe, I'm not sure that I'd want to hear him say that "there are indications that the science is sound."
  14. Forbin

    Trial By Error: And Another Prebuttal…

    The is pretty strange. It sounds like this article might turn out to look like one investigative reporter investigating another investigative reporter. I wonder how other investigative reporters, and reporters at large, are going to feel about that. Someone once said that it is the duty of...
  15. Forbin

    Onset patterns and course of myalgic encephalomyelitis/ chronic fatigue syndrome, 2019, Chu et al

    I haven't read the whole thing in detail, but when they say that 43% of their subjects reported a professional diagnosis of depression, seasonal affective disorder, or dysthymia compared to 7% of the US population, it's not clear to me if they distinguished whether such a diagnosis was made...
  16. Forbin

    Trial By Error: Some Thoughts About an Upcoming Article

    I'm hoping for the best for what, if any, article comes of this - but I'm brushing up on my Latin just in case.
  17. Forbin

    Article: The Special Sleep That Kicks In During a Sickness

    If there's one thing the movies have taught me, it's that scientists should not get mixed up with flies!
  18. Forbin

    Trial By Error: Some Thoughts About an Upcoming Article

    I wonder if those categorized as "dangerous and irrational" will include the 113 leading experts (including 56 PhD's, and at least 59 Physicians), 10 Members of Parliament and 52 Patient/Advocacy groups that called for an independent re-analysis of PACE...
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